The Patient-Centered Outcomes Research Institute (PCORI) will kick off their annual meeting on Tuesday, October 31. I will moderate the first panel, “Access to Results That Matter,” and, as I like to do, I’m starting the conversation early online. Here’s the session description: Traditional health research often does not provide the answers to patients’ questions […]
flip teaching
Access to data = access to power
Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]
“One person’s TMI is another person’s need-to-know.”
– Meredith Gould, aptly summarizing a key discussion point for our upcoming panel, “Communicating the experience of illness in the digital age.” (TMI stands for “too much information.”) We are flipping the panel, posting ideas and sparking conversations in advance so that when we arrive at Stanford Medicine X, the on-stage event will be one more […]
Flip it
Families USA invited me to talk this morning about the intersection of health care, social media, and digital strategy, along with Regina Holliday and Larry Swiader. I decided to flip the presentation and start the conversation a week in advance, on Twitter, and post my slides publicly. If you’re not familiar with the idea of […]
A simcha, not a class, on participatory research
When Larry Chu, the executive producer of Stanford Medicine X, asked me to lead a “master class” at the 2013 meeting, I thought, “No, I’m still a student, not a master!” But I took a deep breath and thought about what I love best about my work, what I feel compelled to share with my […]
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