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Susannah Fox

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e-patient

41% of Adults are “Activated Patients”

October 21, 2008 By Susannah Fox 4 Comments

Two sets of hands sort pills into a pillbox

The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter.   The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).

Filed Under: demographics, research issues Tagged With: data, e-patient, survey

E-patient Interview: Sheryl Stein

May 1, 2008 By Susannah Fox 5 Comments

Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: blog, chronic disease, Common Variable Immunodeficiency, community, CVID, Delivery Methods, Diagnosis, Diagnostician, e-patient, Gammaglobulin Therapy, Health Care Decisions, Humor On, Immune Deficiency Foundation, Ingrained Habit, Listserve, NIH, No Doubt, Pamphlets, Patient Interview, Patient Interviews, patient networks, Pharmaceutical Company, Pros And Cons, Self Advocate, self-care, Whopper

E-health Reality Check–Susannah Fox

January 14, 2008 By Susannah Fox 1 Comment

Press coverage of the Pew Internet Project’s recent report, “Information Searches That Solve Problems,” focused on how “libraries still matter” especially among young people. One aspect that I think merits further attention is how people interact with various information sources when they are dealing with a serious illness or health concern.

Filed Under: trends & principles Tagged With: cancer, doctors, e-patient, hints, librarians, survey

May Old Acquaintance Be Recalled–Susannah Fox

December 22, 2007 By Susannah Fox Leave a Comment

Since it is the season for “Auld Lang Syne” and reconnecting with old acquaintances is an internet pastime, I wanted to link to a wonderful article by Wayne Cooke, a stage IV colon cancer survivor and true e-patient. I haven’t seen him in many years, but because of online storytelling, I am up to date […]

Filed Under: pts as teachers Tagged With: colon cancer, e-patient

Talk of the Nation–Susannah Fox

December 14, 2007 By Susannah Fox 8 Comments

I had the pleasure of being a guest on NPR’s Talk of the Nation yesterday, along with Dr. Scott Haig and Dr. Ted Eytan, to talk about “Do-It-Yourself Diagnosis on the Web.” (For a substantive summary of the show, check out Josh Seidman’s recap.) The producers were smart to kick things off with Dr. Haig’s […]

Filed Under: reforming hc Tagged With: care, doctors, e-patient, Google, healthcare, npr

Patient Centered Health Information Technology–Susannah Fox

November 16, 2007 By Susannah Fox 5 Comments

Does anyone else remember those Reese’s Peanut Butter Cup commercials from the 1980s? “Your peanut butter is in my chocolate!” “Your chocolate is in my peanut butter!” I knew I was getting older when I referred to a partnership as a “two great tastes that taste great together” event and my younger colleague had no […]

Filed Under: positive patterns Tagged With: e-patient, information technology, privacy

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24
  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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