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Susannah Fox

I help people navigate health and technology.

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caregivers

Love made visible

June 23, 2013 By Susannah Fox 31 Comments

Terra cotta soldiers, photograph by O. Louis Mazzatenta

As an anthropology major in college, I was required to take at least one course in archaeology. We studied burial mounds and earthworks (from afar, no digging) and it reminded me of Geology 101, when I learned how scientists spot patterns in the physical landscape. Geologists look for clues to the Earth’s past, and possible […]

Filed Under: demographics, end of life Tagged With: california healthcare foundation, caregivers, Pew Internet, Pew Research Center

Beyond one more search, one more prayer

June 10, 2013 By Susannah Fox 3 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

I had lunch today with Mona Hanford, who shared her vision for helping people navigate to the end of life, based on her own experience as a caregiver for her husband. Our conversation led us to the observation that caregivers often feel like they have to keep fighting on behalf of their loved one. If […]

Filed Under: end of life Tagged With: caregivers, end of life

Caregivers, please share your stories

May 28, 2013 By Susannah Fox 16 Comments

The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please […]

Filed Under: end of life, hc's problem list, key people, peer-to-peer health care Tagged With: AARP, Alzheimers, caregivers, National Family Caregivers Association

Have you ever wondered what it’s like to have Cystic Fibrosis?

May 22, 2013 By Susannah Fox Leave a Comment

Erin Moore, the mom-warrior who created that video, also wrote this essay: Are patients a distraction? I think not… Watch, read, cry, be inspired. I sure am.

Filed Under: e-patient stories Tagged With: caregivers, cystic fibrosis

Look for the helpers

January 7, 2013 By Susannah Fox 9 Comments

A little boy grinning and grasping Mr. Rogers's face

You may have seen the image before, associated with this quote: “When I was a boy and I would see scary things in the news, my mother would say to me, ‘Look for the helpers. You will always find people who are helping.’ To this day, especially in times of ‘disaster,’ I remember my mother’s […]

Filed Under: beauty and wonder Tagged With: caregivers, Mister Rogers, Rare Disease, Washington Post

“Sometimes there isn’t an obvious silver lining to cling to, so you have to try and create your own.”

June 2, 2012 By Susannah Fox Leave a Comment

– Kristen Cerabona, mother of a girl living with CLOVES Syndrome, writing about what it’s like to be a “marathon parent.”

Filed Under: e-patient stories Tagged With: caregivers, Rare Disease

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Recent Comments

  • James on Wow! How? Obesity Treatment: “Inspiring read! Ilant Health’s holistic, shame-free approach to obesity care is exactly what’s needed to address a complex condition with…” Sep 30, 01:23
  • Susannah Fox on Caregiving in America: “I hear you, Mickey! You likely already know about Caring Across Generations and other organizations that have tried to move…” Sep 25, 14:51
  • Mickey Alderman on Caregiving in America: “Interesting information. Being unpaid is a huge issue that has been ongoing for decades. The question we keep asking is…” Sep 25, 10:42

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