I had lunch today with Mona Hanford, who shared her vision for helping people navigate to the end of life, based on her own experience as a caregiver for her husband. Our conversation led us to the observation that caregivers often feel like they have to keep fighting on behalf of their loved one. If […]
caregivers
Caregivers, please share your stories
The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please […]
Have you ever wondered what it’s like to have Cystic Fibrosis?
Erin Moore, the mom-warrior who created that video, also wrote this essay: Are patients a distraction? I think not… Watch, read, cry, be inspired. I sure am.
Look for the helpers
You may have seen the image before, associated with this quote: “When I was a boy and I would see scary things in the news, my mother would say to me, ‘Look for the helpers. You will always find people who are helping.’ To this day, especially in times of ‘disaster,’ I remember my mother’s […]
“Sometimes there isn’t an obvious silver lining to cling to, so you have to try and create your own.”
– Kristen Cerabona, mother of a girl living with CLOVES Syndrome, writing about what it’s like to be a “marathon parent.”
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with […]
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