Just before Thanksgiving, Microsoft released a study entitled, “Cyberchondria: Studies of the Escalation of Medical Concerns in Web Search.” Ryen White and Eric Horvitz took advantage of a data set that few people have access to (log files from Microsoft’s Live Search engine and MSN Health and Fitness) as well as a survey of 515 […]
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Participatory Medicine: Text of my speech at the Connected Health symposium–Susannah Fox
I should have posted this when I posted my slides, but better late than never.
Participatory Medicine, Connected Health–Susannah Fox
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]
e-patients: How they can help us heal healthcare, chapter 1–Susannah Fox
e-Patient Dave joined this group in March 2008 thanks to an introduction by Danny Sands, MD, his primary care physician. Dave quickly established himself as the number one fan of the “white paper,” which we had edited and published after Tom Ferguson’s death. On his home blog, The New Life of e-Patient Dave, he noted […]
Participatory Medicine at NIH, part 2–Susannah Fox
The National Institutes of Health recently gathered a group of consumers and people who study them. We met off-site at a hotel in Bethesda, which I thought was an apt metaphor for the day’s question: How can NIH better communicate with the public? First, I said, make it easier to access your research. Make your […]
Latinos’ sources of health information–Susannah Fox
The Pew Hispanic Center and the Robert Wood Johnson Foundation released a report today that is required reading for anyone interested in a more nuanced picture of the e-patient population: “Hispanics and Health Care in the United States: Access, Information and Knowledge.”
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