I should have posted this when I posted my slides, but better late than never.
Search Results for: internet access
Participatory Medicine, Connected Health–Susannah Fox
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]
e-patients: How they can help us heal healthcare, chapter 1–Susannah Fox
e-Patient Dave joined this group in March 2008 thanks to an introduction by Danny Sands, MD, his primary care physician. Dave quickly established himself as the number one fan of the “white paper,” which we had edited and published after Tom Ferguson’s death. On his home blog, The New Life of e-Patient Dave, he noted […]
Participatory Medicine at NIH, part 2–Susannah Fox
The National Institutes of Health recently gathered a group of consumers and people who study them. We met off-site at a hotel in Bethesda, which I thought was an apt metaphor for the day’s question: How can NIH better communicate with the public? First, I said, make it easier to access your research. Make your […]
Latinos’ sources of health information–Susannah Fox
The Pew Hispanic Center and the Robert Wood Johnson Foundation released a report today that is required reading for anyone interested in a more nuanced picture of the e-patient population: “Hispanics and Health Care in the United States: Access, Information and Knowledge.”
E-patients with Agency (or Attitude?)–Susannah Fox
What are the social and psychological factors that affect how someone is treated — or even their health outcomes? This question has popped up in my reading and in my work quite a bit this week, so I wanted to share what I have learned from three leading thinkers: Peggy Orenstein, Dr. Jeffrey Lin, and […]
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