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Susannah Fox

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Search Results for: internet access

E-patients, Cyberchondriacs, and Why We Should Stop Calling Names

August 30, 2010 By Susannah Fox 63 Comments

New concepts need gimmicks. Proven concepts do not. The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms. Carlos Rizo and I invite you (everyone!) to join our discussion on Wed. Sept. 1 at […]

Filed Under: trends & principles Tagged With: Alex Howard, Amy Tenderich, Carlos Rizo, Clay Shirky, Cyberchondriac, e-patients, Harris Interactive, Jen McCabe, Pew Internet

Patient Communities: Which Way Forward?–Susannah Fox

August 9, 2010 By Susannah Fox 12 Comments

If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek SimCity exercise. I was actually asked that question recently, by people who have lined up the […]

Filed Under: patient networks Tagged With: ACOR, cancer, Decision Tree, health 2.0, imedo, iWantGreatCare, paginemediche.it, Paris, participatory medicine, patientslikeme, Pew Internet, The Moment

Patient Communities… at Walgreens?

June 17, 2010 By Susannah Fox 30 Comments

Aisle of a Walgreens drug store

UPDATE: On Feb. 18, 2015, PatientsLikeMe and Walgreens announced a partnership: “Now, anyone researching a medication or filling a prescription on Walgreens.com can access a simple snapshot that shows how their prescribed medication has impacted other patients on the therapy, including medication side effects, as reported by PatientsLikeMe members.” One more step away from “crazy” and toward “obvious” […]

Filed Under: e-pts resources, patient networks Tagged With: American Well, CureTogether, Diabetic Connect, Diana Forsythe, E-Patient Dave, Google Health, Inspire, MedHelp, Microsoft HealthVault, patientslikeme, Rite Aid, Ted Eytan, Walgreens

Health Geek Tip: Abstracts are ads. Read full studies when you can.–Susannah Fox

June 16, 2010 By Susannah Fox 16 Comments

Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you:

Filed Under: research issues Tagged With: cancer, Gary Schwitzer, Gilles Frydman, HealthNewsReview, Ivan Oransky, national cancer institute, Wikipedia

Making Health Data Sing (Even If It’s A Familiar Song)

June 2, 2010 By Susannah Fox 5 Comments

Todd Park is determined to make health data hot. He is leading the U.S. Department of Health & Human Service’s effort to make more of their data sets publicly available, from nursing home quality ratings to the food environmental atlas (view the full list of available downloads). As he says, HHS doesn’t want to choreograph […]

Filed Under: trends & principles Tagged With: Health Datapalooza

The Power of Data and the Power of One

May 5, 2010 By Susannah Fox 13 Comments

I am struck, once again, by the power of data and the power of one. Carlos Rizo, Chief Imagineer of the Health Strategy Innovation Cell, posted this very intriguing tweet on May 2: The power of open data: To find problems in complicated environments, and possibly even to prevent them from emerging. Clicking through, I […]

Filed Under: policy issues, trends & principles Tagged With: Carlos Rizo, Gov 2.0, health 2.0, open data, Personal Democracy Forum, pew internet project, Regina Holliday, Ted Eytan

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