I should have posted this when I posted my slides, but better late than never.
trends & principles
Participatory Medicine, Connected Health–Susannah Fox
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]
The Im-Patient Consumer–Susannah Fox
Josh Seidman has a new entrant in the health care name game: The Im-Patient Consumer. As he explains, “Americans for the most part are too [expletive of choice] patient with the absurd care that they get for more than $2 trillion a year.”
Participatory Medicine at NIH, part 2–Susannah Fox
The National Institutes of Health recently gathered a group of consumers and people who study them. We met off-site at a hotel in Bethesda, which I thought was an apt metaphor for the day’s question: How can NIH better communicate with the public? First, I said, make it easier to access your research. Make your […]
Not Just a Pretty Picture–Susannah Fox
The Journal of the National Cancer Institute published health risk data in a way that only a researcher would love (Reason.com’s Hit & Run blog links to the subscription-only charts here in case you want to marvel at the ugliness). Luckily The New York Times took notice and painted a picture that everyone can appreciate. […]
Participatory Medicine at NIH–Susannah Fox
I always suspect that audience members have as much to share as I have to say. So when Mary Madden and I received an invitation to speak at the National Institutes of Health we created a participatory talk about participatory medicine: 35 minutes of our findings; 45 minutes of discussion. It was a blisteringly hot […]
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