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Susannah Fox

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trends & principles

Twitter, Facebook, and e-patients–Susannah Fox

February 13, 2009 By Susannah Fox 10 Comments

Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share information—reveals their affinity for mobile, untethered and social opportunities for […]

Filed Under: trends & principles Tagged With: Facebook, Twitter

Participatory Medicine: Text of my speech at the Connected Health symposium–Susannah Fox

November 3, 2008 By Susannah Fox 3 Comments

Light bulbs in the night sky - a photo by Ted Eytan

I should have posted this when I posted my slides, but better late than never.

Filed Under: trends & principles Tagged With: connected health, health 2.0, participatory medicine, pew internet project, social media

Participatory Medicine, Connected Health–Susannah Fox

October 30, 2008 By Susannah Fox 14 Comments

The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008.  I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]

Filed Under: trends & principles Tagged With: data, e-patients, participatory medicine

The Im-Patient Consumer–Susannah Fox

September 26, 2008 By Susannah Fox 6 Comments

Josh Seidman has a new entrant in the health care name game: The Im-Patient Consumer. As he explains, “Americans for the most part are too [expletive of choice] patient with the absurd care that they get for more than $2 trillion a year.”

Filed Under: trends & principles

Participatory Medicine at NIH, part 2–Susannah Fox

September 15, 2008 By Susannah Fox 7 Comments

The National Institutes of Health recently gathered a group of consumers and people who study them. We met off-site at a hotel in Bethesda, which I thought was an apt metaphor for the day’s question: How can NIH better communicate with the public? First, I said, make it easier to access your research. Make your […]

Filed Under: trends & principles

Not Just a Pretty Picture–Susannah Fox

September 4, 2008 By Susannah Fox 1 Comment

The Journal of the National Cancer Institute published health risk data in a way that only a researcher would love (Reason.com’s Hit & Run blog links to the subscription-only charts here in case you want to marvel at the ugliness). Luckily The New York Times took notice and painted a picture that everyone can appreciate. […]

Filed Under: hc's problem list, policy issues, trends & principles

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Recent Comments

  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26
  • Dave deBronkart on Patient Input on Clinical Trials: “I don’t have anything to add but I have a suggestion for the problem that trialists don’t *know* about the…” Oct 16, 14:01
  • Rufus on Hack needed: Tiny pills, trembling hands: “How about using a small piece of store bought bread? Slices of bread can be “smooshed,” and a small piece…” Oct 5, 23:48

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