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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Just the way you are

August 6, 2012 By Susannah Fox 7 Comments

Olympic athletes

Who is an elite athlete? All of them.There are a dozen photos like this, captured in a book by Howard Schatz and Beverly Ornstein, which caught my eye thanks to this tweet: We are the shape we are because of how we use our bodies: Diversity in elite athlete body shape bit.ly/OmXy2B — Andrew & […]

Filed Under: general

“What is the use of living, if it be not to strive for noble causes…”

July 27, 2012 By Susannah Fox Leave a Comment

Statue of Winston Churchill in Washington, DC

“…and to make this muddled world a better place for those who will live in it after we are gone?” – Winston Churchill. I bike past this statue every day on the way to and from work and stopped the other day to read the plaque. One foot is on U.S. soil, the other on […]

Filed Under: general Tagged With: bicycling

“I was born too soon” – my grandmother, upon seeing the Web for the first time

July 24, 2012 By Susannah Fox Leave a Comment

Internet penetration in the US was at 14% in 1995

The 19th International AIDS Conference, held this week in Washington, DC, included a session entitled, “The State of New Media and HIV,” hosted by AIDS.gov. My role on the panel was a familiar one – to present the Pew Internet Project’s latest research about mobile, social technologies and their impact on health and health care. […]

Filed Under: internet geology, social media, trends & principles Tagged With: AIDS.gov, family, HIV/AIDS, Pew Internet, Rosalie Yerkes Figge

On the internet, the expression of your spirit has nothing to do with the expression on your face.

July 19, 2012 By Susannah Fox Leave a Comment

– the line I added to my speech on the train up to Philadelphia last Saturday. I wanted to convey to the people attending the 2012 Moebius Syndrome Conference that I admire them and see them as pioneers of peer-to-peer health care. My full post is on e-patients.net: Health Care Hackers

Filed Under: patient networks Tagged With: Moebius Syndrome, peer-to-peer healthcare

“There are 3 types of people…”

July 16, 2012 By Susannah Fox Leave a Comment

“People who think that people with disabilities can’t do anything, that we’re fragile and in need. People who think we are inspirational and think we can fly to the moon if we wanted to. People who treat us like everyone else, who know that we’ll ask for help if we need it but otherwise we’re […]

Filed Under: research issues Tagged With: disability, Moebius Syndrome

Participatory Research

July 11, 2012 By Susannah Fox Leave a Comment

I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.

Filed Under: participatory research, research issues, social media, trends & principles Tagged With: e-patients, participatory research, Pew Internet, Twitter

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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