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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Who are you addicted to on Twitter? Parents edition.

July 25, 2013 By Susannah Fox 6 Comments

My mom like twitter very much

Here are a few of the people I’m addicted to for insights on parenting & health: @SavingCase – Mom of a child with a rare disease. I’m addicted to how she keeps the window into her life crystal clear so we all can learn from her experiences. Erin Moore – Mom of a child with […]

Filed Under: key people Tagged With: caregivers, moms, Twitter

Taking care (what I’m reading)

July 19, 2013 By Susannah Fox 4 Comments

The following articles stopped me in my tracks this week, not least because they relate to my last report, “Family Caregivers are Wired for Health.” Please share what you’re reading — or your thoughts about these articles — in the comments. 1. Dementiaville: How an experimental new town is taking the elderly back to their happier […]

Filed Under: e-patient stories, shared decision making Tagged With: #whatifhc, Alexandra Drane, Bill Thomas, caregivers, Carolyn Thomas, health 2.0, Nick Dawson, Unmentionables

The Walking Gallery in Bilbao

July 17, 2013 By Susannah Fox 2 Comments

Bacigalupe and I at the Guggenheim Bilbao

One of my hosts for Salud 2.0 Euskadi, Gonzalo Bacigalupe, in our jackets painted by Regina Holliday, in front of the Guggenheim Museum. Yes, it was that beautiful. Every day.

Filed Under: beauty and wonder Tagged With: Bilbao, The Walking Gallery

Participatory research: it’s not everything, it’s the only thing

July 15, 2013 By Susannah Fox 5 Comments

Campo Volantin footbridge in Bilbao

One of my favorite structures in Bilbao is the Campo Volantin footbridge, designed by Santiago Calatrava. I went out of my way to walk over it many times while I was visiting that beautiful city. Approaching it was a visual treat and there were always musicians playing on it, an aural treat. But once you […]

Filed Under: beauty and wonder, participatory research Tagged With: Bilbao, Diana Forsythe, E-Patient Dave

Osasuna, Salud, Health 2.0

July 6, 2013 By Susannah Fox 23 Comments

I will speak on Monday in Bilbao at an event with 3 names but one goal: to understand how to use social media to innovate and improve health, with a special focus on evidence and the future. I’m looking forward to learning from my hosts and listening to two beautiful languages.

Filed Under: peer-to-peer health care, positive patterns, social media, trends & principles Tagged With: Basque, Bilbao, caregivers, Spain

3 articles worth your time

July 3, 2013 By Susannah Fox 3 Comments

Here are three articles spinning around in my head today: A Letter to Patients With Chronic Disease – written by Rob Lamberts, MD, in 2010, tweeted this morning by Ronan Kavanagh, MD. Key quote: “So when you approach a doctor – especially one you’ve never met before – you come with a knowledge of your disease […]

Filed Under: e-patient stories, key people, net-friendly docs, pts as teachers, research issues Tagged With: #whatifhc

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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