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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Parkinson’s For One Day

June 14, 2015 By Susannah Fox 10 Comments

Pill bottles

My new job is wonderfully immersive. I leave home early, come back late, and, in between, spend hours talking with people about the future of health, health care, and technology (broadly defined). The HHS IDEA Lab blog will be my outlet for sharing ideas related to the work I do there. This site will serve, as it […]

Filed Under: key people, others' e-patient stories, social media Tagged With: empathy, Parkinson's, Smart Patients

I’m the New CTO of HHS

May 28, 2015 By Susannah Fox 44 Comments

Kids holding up an American flag at the Freedom Classic 2015 by Zach Frailey

I am thrilled to share the news that I am the new Chief Technology Officer at the U.S. Department of Health and Human Services. Grateful for the opportunity to serve under the leadership of Secretary Burwell — truly an extraordinary person. Full post (originally appeared on HHS.gov): When I left the Pew Research Center to advise […]

Filed Under: policy issues Tagged With: Hhs, Pew Research Center, public service, Robert Wood Johnson Foundation

Troublemaker vs. Rebel

May 24, 2015 By Susannah Fox 8 Comments

List of attributes: troublemaker vs rebel by Lois Kelly

I adore this slide that Wendy Sue Swanson, MD, captured during a presentation by Helen Bevan. The list was formulated by Lois Kelly and I highly recommend exploring her site: Foghound.com. The word pair that resonates most with me is “alienate vs. attract,” possibly because it reminds me of my grandmother‘s advice: You catch more […]

Filed Under: key people Tagged With: Rosalie Yerkes Figge, Wendy Sue Swanson

Quantified Self Public Health

May 12, 2015 By Susannah Fox 11 Comments

Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]

Filed Under: key people, participatory research, research issues Tagged With: Don Norman, home health care hacks, Ian Eslick, maker movement, public service, QSPH, Quantified Self

How my food-allergy community “flips the clinic”

May 11, 2015 By Susannah Fox Leave a Comment

May 10-16, 2015, is Food Allergy Awareness Week. I am grateful to the women (and a few men) who help me care for my child with food allergies. I’ve never met most of them in person, but they are there for me, 24×7, answering questions and sharing resources.

Filed Under: e-patient stories, patient networks, peer-to-peer health care Tagged With: food allergy, Stanford Medicine X

Public Q&A: Online patient communities

April 29, 2015 By Susannah Fox 1 Comment

A community colleague recently asked me where he might find the latest numbers on the percentage of U.S. adults who participate in online patient communities. In the spirit of “public Q&A” I’d like to share my answer and ask people to add tips about other resources in the comments. Up until July 2014, I led […]

Filed Under: patient networks, peer-to-peer health care, public Q&A, trends & principles Tagged With: Pew Internet, Pew Research Center

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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