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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Troublemaker vs. Rebel

May 24, 2015 By Susannah Fox 8 Comments

List of attributes: troublemaker vs rebel by Lois Kelly

I adore this slide that Wendy Sue Swanson, MD, captured during a presentation by Helen Bevan. The list was formulated by Lois Kelly and I highly recommend exploring her site: Foghound.com. The word pair that resonates most with me is “alienate vs. attract,” possibly because it reminds me of my grandmother‘s advice: You catch more […]

Filed Under: key people Tagged With: Rosalie Yerkes Figge, Wendy Sue Swanson

Quantified Self Public Health

May 12, 2015 By Susannah Fox 11 Comments

Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]

Filed Under: key people, participatory research, research issues Tagged With: Don Norman, home health care hacks, Ian Eslick, maker movement, public service, QSPH, Quantified Self

How my food-allergy community “flips the clinic”

May 11, 2015 By Susannah Fox Leave a Comment

May 10-16, 2015, is Food Allergy Awareness Week. I am grateful to the women (and a few men) who help me care for my child with food allergies. I’ve never met most of them in person, but they are there for me, 24×7, answering questions and sharing resources.

Filed Under: e-patient stories, patient networks, peer-to-peer health care Tagged With: food allergy, Stanford Medicine X

Public Q&A: Online patient communities

April 29, 2015 By Susannah Fox 1 Comment

A community colleague recently asked me where he might find the latest numbers on the percentage of U.S. adults who participate in online patient communities. In the spirit of “public Q&A” I’d like to share my answer and ask people to add tips about other resources in the comments. Up until July 2014, I led […]

Filed Under: patient networks, peer-to-peer health care, public Q&A, trends & principles Tagged With: Pew Internet, Pew Research Center

Hack needed: Tiny pills, trembling hands

April 19, 2015 By Susannah Fox 69 Comments

Top of a pill bottle reads "Close Tightly" Image by Are W on flickr

A friend writes: I am sweeping the kitchen and just found one of my brother-in-law’s Parkinson’s pills [Ropinirole]. Every time he has to take it, he drops it. It is tiny and, well, he has Parkinson’s. I can’t tell you how many times the kids end up on the floor looking for the pill he […]

Filed Under: peer-to-peer health care Tagged With: home health care hacks, Parkinson's

The Value of Data

April 15, 2015 By Susannah Fox 9 Comments

Patient Records by ken fager on flickr

Health care is in danger of missing the point. (A repost from 2014 that’s relevant today thanks to announcements at HIMSS.) In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at U.S.News saw an opportunity […]

Filed Under: hc's problem list, health data, medical records, trends & principles Tagged With: big data, E-Patient Dave, Health Data, Health Data Rights, Health Datapalooza, John Halamka, Paul Levy, SMARTHealthIT

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  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46
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