I respect secrets. When my grandmother died at age 96 and a half, her final words were: “Erase my email.” Why? I don’t need to know. And she is not someone you want to cross (present tense — her spirit is still here with me, urging me to live a big life.) But I am […]
Archives for December 2014
Thank you, Sean Parker
I have a new essay up on Medium: Thank you, Sean Parker. I tell why I’m so grateful to him for his gift to food-allergy research and l share a little bit about why I don’t read comments on food-allergy stories. Also: please check out more cartoons by Tiffany Glass Ferreira — she is awesome:
Imagining better outcomes for T1D with #MakeHealth
This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone […]
Public Q&A: How do you know when you are heading in the right – or wrong – direction?
Here’s a question I received recently: What kinds of indicators tell you if you are going in the right — or wrong — direction in your work? I decided to answer it here, as a public Q&A, because it merits crowd-sourcing.
Public Q&A: Alternatives to Facebook and YouTube?
Kathleen Bogart, PhD, studies how people communicate across disability. I met her through the work I’ve done with the Moebius Syndrome Foundation (and I wrote about her research in 2012: Facial Paralysis, Not Personality Paralysis). She emailed me with a very intriguing question, so I’m sharing it here for discussion: Moebius Syndrome is a highly […]
Giving Tuesday: The Walking Gallery Center for Arts and Healing
On this Giving Tuesday, consider donating money to support Regina Holliday’s latest project: The Walking Gallery Center for Arts and Healing.
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