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Susannah Fox

I help people navigate health and technology.

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Map the frontier. Bring data. (More coming soon!)–Susannah Fox

May 11, 2011 By Susannah Fox Leave a Comment

The Pew Internet Project and California HealthCare Foundation will released our latest report on the internet’s impact on health and health care tonight at midnight (Eastern U.S. time). It is titled, “The Social Life of Health Information, 2011” (and for those following closely, that is a hint that we are updating trends we first measured […]

Filed Under: general, trends & principles Tagged With: california healthcare foundation, Mobile Health, Pew Internet

ISO: Randomized Trials–Susannah Fox

April 13, 2011 By Susannah Fox 10 Comments

I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health care, cancer screening, diabetes care, etc)? My answer: I haven’t done a […]

Filed Under: found on the net Tagged With: Cancer Screening, diabetes, Diabetes Care, email, Health Org, Innovations, Innovators, Iso, Literature Search, Networking Web, Ocs, Patient Level, Preventive Health Care, Randomized Trials, Researcher, Social Networking, Variables

PatientsLikeMe goes wide

April 11, 2011 By Susannah Fox 6 Comments

PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ […]

Filed Under: found on the net, patient networks, peer-to-peer health care Tagged With: patientslikeme, peer-to-peer healthcare

An ode to health data rights

April 8, 2011 By Susannah Fox 10 Comments

Fun for Friday: David Hale singing an ode inspired by Regina Holliday and e-Patient Dave:

Filed Under: health data, medical records Tagged With: David Hale, E-Patient Dave, Regina Holliday

Peer-to-peer healthcare on NPR

April 4, 2011 By Susannah Fox 8 Comments

To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs“). I read up on the facts and try to make sense of the latest turn […]

Filed Under: patient networks

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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