In his book, The Long Haul, Ryan Prior writes about his advocacy on behalf of people with ME/CFS: Though I had negotiated a fragile truce with the disease, my deeper fear was that it would eventually fully disable me, just as it had done for so many of my friends…At the edge of my every thought […]
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Wow! How? Peer Support for Queer Youth
Today’s “wow” is unfortunately a troubling statistic: 49% of LGBTQ+ young people in the U.S. experience depressive symptoms, according to a survey conducted by Hopelab and Common Sense Media, compared with 24% of their straight and cisgender peers. But many Queer youth are meeting the challenge by accessing online therapy to a greater degree (44%, […]
Wow! How? Patient-led Biodesign
This post is part of my LinkedIn series: Wow! How? Health. Jules Sherman designs pediatric medical products, like a delayed cord-clamping cart and a special robe to help make neonatal skin-to-skin care safer. In 2016, she was called into a hospital room to observe a new mom using a device that Sherman had created to collect […]
Wow! How? Obesity Treatment
This post is part of my LinkedIn series: Wow! How? Health. Four in ten U.S. adults have obesity, according to the National Center for Health Statistics. That includes 9% of U.S. adults with severe obesity, which is defined as having a body mass index over 40. Shame and stigma compound their health problems. “You wear […]
Wow! How? Learning Health Networks
In 2007, pediatric gastroenterologists began tracking and sharing best practices as they cared for kids with Crohn’s disease and ulcerative colitis. Their “all teach, all learn” philosophy invited patients and families to participate as key members of the care innovation teams. The results have been astonishing: 82% of patients in the ImproveCareNow network of 100+ […]
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