Inspired by a suggestion from Michael Seid of the C3N Project, people began tweeting their health care dreams, tagged with #whatifhc. Note: in August 2014 I flipped the order so that new ideas are on top.
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“They come from the same community”
I often share links on Twitter, but without the context I’d love to give to each one. A few recent stories of the power of peer connection around health and well-being: Washington Post: Butterfly babies : A rare disease makes these young girls’ skin break and peel at the slightest touch, like a butterfly’s wings As […]
Case study: Brain surgery
We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]
How did you find your people?
The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]
The online health revolution (it’s not too late to jump in)
Thanks to Joyce Lee, MD, for resurfacing this talk on Twitter today! In watching it again, I’m struck by how the data needs to be updated, but the insights don’t. Clinicians have not yet missed their chance to contribute to the online health revolution (nearly 4 years later)! The tools are going to change, but what […]
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