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Susannah Fox

I help people navigate health and technology.

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MacGyvering home health care

September 4, 2017 By Susannah Fox 1 Comment

Detail of a painting by Regina Holliday shows a hand holding a smartphone with the PatientsLikeMe symbol

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Sally Okun, in response to “Hacking home health care” (2014) Just the other day I was getting the second pedicure of my life (although I may need to do that again soon) and the manicurist […]

Filed Under: featured commenters Tagged With: home health care hacks

We need a whole-community response in health and health care

August 29, 2017 By Susannah Fox 10 Comments

A group of men stand in knee-deep flood waters with two kayaks. One man is in a kayak.

At no other time in history have we been able to communicate across the world, in an instant, with anyone and everyone who has knowledge and experience to share. Never has it been so easy to solve problems together. When it comes to your health, your community may be your superpower.

Filed Under: peer-to-peer health care, positive patterns Tagged With: Health System Change, Hurricane Harvey, maker movement, peer-to-peer healthcare, Texas

Family caregivers – a recipient’s perspective

August 28, 2017 By Susannah Fox 2 Comments

Long shadow cast by two people holding hands

Someone once told me that I “write to incite” and indeed, I am thrilled when a post resonates enough to inspire a conversation that often goes on longer and has more nuggets of insight than the original essay. I’d like to honor the contributions of my community colleagues over the years by pulling out some […]

Filed Under: featured commenters Tagged With: caregivers

Refreshed

August 24, 2017 By Susannah Fox 12 Comments

Light bulbs in the night sky - a photo by Ted Eytan

Inspired by a suggestion from Michael Seid of the C3N Project, people began tweeting their health care dreams, tagged with #whatifhc. Note: in August 2014 I flipped the order so that new ideas are on top.

Filed Under: positive patterns Tagged With: #InventHealth, #whatifhc, Pew Internet, Pew Research Center, Storify, Ted Eytan

“They come from the same community”

June 13, 2017 By Susannah Fox 3 Comments

Long fingers circling a wrist

I often share links on Twitter, but without the context I’d love to give to each one. A few recent stories of the power of peer connection around health and well-being: Washington Post: Butterfly babies : A rare disease makes these young girls’ skin break and peel at the slightest touch, like a butterfly’s wings As […]

Filed Under: peer-to-peer health care Tagged With: Flickr, India, mental health, npr, peer counseling, Rare Disease, rare diseases, Washington Post, Youtube

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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