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Susannah Fox

I help people navigate health and technology.

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Chasing cures

September 10, 2019 By Susannah Fox 7 Comments

CHASING MY CURE book cover

Years ago, I met a mom of a child with a rare disease who matter-of-factly shared her story, which included as many twists and close calls as any blockbuster summer movie. I marveled at her heroism and she said no, she rejects that description. “I’m not a hero,” she insisted. “I’m a typical mom. You […]

Filed Under: e-patient stories, key people, positive patterns Tagged With: Abby Norman, Afternoon Napper, Bon Ku, Dana Lewis, David Fajgenbaum, Doug Lindsay, Rare Disease, rare diseases, Sharon Terry, Terry Jo Bichell

A helping hand, just in time

August 26, 2019 By Susannah Fox 5 Comments

D-ABNT by Benedikt Lang on Flickr - cropped

Some years ago a few colleagues and I got stuck at Logan Airport and we started telling stories to pass the time. One tale has come back to me over and over again, particularly as I cared for my dad during his last year of life, because it reminded me to be open to the possibility […]

Filed Under: peer-to-peer health care Tagged With: Francis Collins, NIH, Rare Disease, rare diseases, Sharon Terry

Assessing the quality of peer health advice

August 12, 2019 By Susannah Fox 37 Comments

Trust

“Can you really trust what you read online?” is a frequent (and valid) question about online health information, particularly peer to peer advice. People who are part of healthy peer communities sometimes scoff at the question since they see so much good coming from the opportunity to connect and share information. But how might we […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Information Quality, John Grohol, peer-to-peer healthcare, Trustworthiness

Public Q&A: Acronyms, protocol, and other lessons learned from switching fields

July 29, 2019 By Susannah Fox 2 Comments

summer on the track - urban photography by Filip Patock on Flickr

If you have switched career tracks, what lessons did you learn? What advice would you have for someone entering a new company, organization, or even a new culture? Here’s an excerpt from my 2016 interview with The Public Manager about working for the U.S. government: Most of your career was outside of the federal government. What have […]

Filed Under: public Q&A Tagged With: career advice, Hhs, innovation

Celebrating invention and innovation

July 15, 2019 By Susannah Fox 7 Comments

Tools by Dorli Photography on Flickr

We are going to need all the ingenuity and help we can get to untangle and improve health and health care. Everyone should have access to the data, information, and tools they need to solve problems. That includes access to each other – peer to peer. My hope is for people to look at a […]

Filed Under: positive patterns Tagged With: #InventHealth, Fda, George Hacks, Hhs, Invent Health, Lemelson Center, maker movement, prize competitions, veterans

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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