Here’s how I’ve been talking about health data interoperability recently, with an appeal to people’s patriotism (and their appetites):
At the start of the video, I thank Mona Siddiqui, MD, for her service as the Chief Data Officer at the U.S. Department of Health and Human Services. To learn more about her portfolio, check out the HHS Data Initiative. At the end, I talk about my friend Hugo Campos. To learn more about Hugo and his fight for data access, please see this article in The Economist and his talk at a 2015 Quantified Self meeting.
Image: Cheddar cheese being sliced by a sharp knife, by Bradley Huchteman on Flickr.
e-Patient Dave says
Where was this talk?
1995, zero-revenue, Amazon … “Don’t denigrate the tools” – hallelujah, another perfect spot-on SFox observation!
Since 2010 my version of knife & cheese has been “To innovators, data is fuel. No engine can create any value if it doesn’t have fuel.”
“Medtronic is hoarding the cheese” – again perfect, but with the follow-on consequence that too often observers then see that in the ABSENCE of “data cheese,” patients dont’ know what’s going on, and with circular logic, some then conclude patients COULDN’T do anything.
It reminds me (as I’m sure we’ve discussed) of a half century ago (twice as “ancient” as Amazon’s founding) when women weren’t allowed to register in the Boston Marathon because “everybody knows girls aren’t athletic.” It’s tricky to look at current reality and seeing what obstacles might be limiting what we see today!
Susannah Fox says
Hallelujah and pass the cheese plate!
This was at a small event that was otherwise not recorded but I asked the organizers for the video because I felt like I’d finally got the riff right.
Naomi Price says
I am so spoiled! At urgent care yesterday outside my usual health system (I am fine) they had my record, including my medication list. Thank you, Oregon HITOC for embedding interoperability.
Susannah Fox says
The way it should be! Thanks, Naomi.