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Susannah Fox

I help people navigate health and technology.

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Case study: Breast cancer

December 7, 2020 By Susannah Fox 16 Comments

Sunflower in a field of other sunflowers

When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us.  That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: breast cancer, case study, peer-to-peer healthcare, sunflowers

What if we had people’s trust?

November 30, 2020 By Susannah Fox 8 Comments

Trust

I’d like to revive the spirit of the “What if health care…?” conversation, this time in the context of data and trust. What could we build with health data if we had people’s trust? How about: An algorithm to prevent suicide. An app to prevent addiction relapse. An app to help adolescents living with chronic […]

Filed Under: health data Tagged With: #whatifhc, addiction, adherence, Airbnb, FasterCures, Johnson & Johnson, Project HealthDesign, suicide prevention, Trustworthiness

Acceptable uses of health data

November 23, 2020 By Susannah Fox 4 Comments

Cat peering out from under a computer keyboard

My former colleagues at the Pew Research Center continue to publish the best research on the impact of the internet on American society, bar none. My fandom extends to creating a fact sheet summarizing their recent surveys about Americans’ data worries. The results are indications about what people think and feel about the shifting technology […]

Filed Under: health data Tagged With: FasterCures, fitness, Pew Internet, Pew Research Center, self-tracking, social media, Tracking for Health

Credible, useful, helpful, trustworthy

November 16, 2020 By Susannah Fox 6 Comments

Sandhill cranes taking flight at sunrise

Inspired by a conversation with my FasterCures colleagues, I began looking into survey data related to trust and credibility, particularly: What entities and resources do people turn to when they need advice about important topics? Edelman, a global communications firm, has been measuring trust and credibility for 20 years. Their most recent Trust Barometer asked […]

Filed Under: peer-to-peer health care Tagged With: diabetes, Edelman, FasterCures, Pew Internet, Pew Research Center, Tom Ferguson, Trustworthiness

How connection can lead to change

November 11, 2020 By Susannah Fox 30 Comments

Screenshot of Harvard Business Review article about how chronic disease patients are innovating together online

In April, Harvard Business Review published my article, “How Chronic-Disease Patients Are Innovating Together Online.” Since then I’ve been collecting other stories about people gathering online to solve their own problems — an innovation pipeline powered by what I call peer-to-peer health care. Fortunately and unfortunately, there are many examples. People living with long-term effects […]

Filed Under: patient networks, peer-to-peer health care Tagged With: All of Us, Body Politic, Brene Brown, cdc, COVID19, LongCovid, Quantified Self

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Recent Comments

  • Jill H. on Case study: Trevor’s disease: “Hello Carrie, I am curious how your son is doing after the surgery? Were you able to fix the locked…” May 28, 19:07
  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11

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