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Susannah Fox

I help people navigate health and technology.

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Health 2.0 DC: Passion and Execution at Scale

June 8, 2010 By Susannah Fox 7 Comments

Exterior of the National Museum of American History in Washington, DC, with the Washington Monument in the background

I think conferences are deeply affected by the spirit of their host city.  San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and execution — at scale. Leave it to others to point […]

Filed Under: patient networks, policy issues Tagged With: Chordoma, Data Transparency, David Hale, Gov 2.0, health 2.0, Indu Subaiya, Institute Of Medicine, John Mendelsohn, Josh Sommer, Ken Buetow, Patrick Soon-Shiong, pillbox, Tim O'Reilly, Todd Park

Making Health Data Sing (Even If It’s A Familiar Song)

June 2, 2010 By Susannah Fox 5 Comments

Todd Park is determined to make health data hot. He is leading the U.S. Department of Health & Human Service’s effort to make more of their data sets publicly available, from nursing home quality ratings to the food environmental atlas (view the full list of available downloads). As he says, HHS doesn’t want to choreograph […]

Filed Under: trends & principles Tagged With: Health Datapalooza

Gov 2.0 Expo: Health Geek Guide

May 24, 2010 By Susannah Fox 6 Comments

The cross-disciplinary smorgasbord that is Gov 2.0 Expo will be held this week in DC.  The agenda is packed with nerdy temptations (danah boyd! Anil Dash! Tim Berners-Lee!) but here are my can’t-miss sessions.

Filed Under: found on the net, hc's problem list, policy issues Tagged With: Crisis Commons, David Hale, Fda, Gov 2.0, Hhs, Jay Parkinson, National Library of Medicine, pillbox, Regina Holliday, Ted Eytan, Todd Park

A New Conversation About Health Privacy: Who’s In?

May 21, 2010 By Susannah Fox 29 Comments

Light bulbs in the night sky - a photo by Ted Eytan

Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness settings (but the company maintains radio silence)? Pew Internet research shows that a sizeable […]

Filed Under: health data, patient networks, policy issues Tagged With: Facebook, Hipaa, patientslikeme, Pew Internet, privacy

Participant-Entrepreneurs: Innovating Toward Better Health–Susannah Fox

May 13, 2010 By Susannah Fox 4 Comments

Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the most, I was the least likely to be recording them. Why? On the worst […]

Filed Under: e-patient stories, key people Tagged With: Contagion Health, Crohnology.MD, CureTogether, diabetesmine, getupandmove.me, i'm too young for this, Project HealthDesign, Robert Wood Johnson Foundation, Transparency

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