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Susannah Fox

I help people navigate health and technology.

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Katie McCurdy

Wow! How? For Love & Life

June 4, 2024 By Susannah Fox Leave a Comment

Movie poster: For Love and Life: No Ordinary Campaign. Amazon Prime May 28. Two people embrace, smiling, looking up.

This essay is part of my LinkedIn newsletter series: Wow! How? Health. Brian Wallach and Sandra Abrevaya brought their second daughter home on the same day that he received a devastating diagnosis: amyotrophic lateral sclerosis (ALS). Brian was told he had six months to live. Seven years later, Brian is still alive. He and Sandra […]

Filed Under: Champions, Networkers Tagged With: ALS, Amy Tenderich, Anthony Carbajal, Brian Wallach, Casey Quinlan, diabetesmine, Elizabeth Jameson, Gilles Frydman, I AM ALS, Jamie Heywood, Katie McCurdy, Maggie Whittum, Michael Graves, Pictal Health, Rebel Health, Sandra Abrevaya, Stephen Heywood, Synapticure, Wow! How? Health, Yoko Sen

Health data’s adolescence

March 5, 2014 By Susannah Fox 8 Comments

I wrote a guest post for the Health Data Consortium — here’s the start of it: This year marks the 25th anniversary of Sir Tim Berners-Lee’s proposal to create what we now call the Web, the visual, hypertext organizing system which overlays the internet. The pace of internet adoption gathered speed once people could more intuitively […]

Filed Under: internet geology, positive patterns Tagged With: Blue Button, Health Datapalooza, Katie McCurdy, Pew Research Center, ProPublica, Quantified Self, RunKeeper, Tracking for Health

The e is for engagement

October 29, 2012 By Susannah Fox 13 Comments

Painting: "Skinny Genes" by Regina Holliday for Stanford Medicine X

What if we redefined the Quantified Self movement to include everyone who keeps a pair of “skinny jeans” in their closet? What if the 85% of U.S. adults who own a cell phone understood that it’s potentially a tool for health tracking? What if everyone designing health care tools first talked with patients and caregivers […]

Filed Under: pts as teachers, trends & principles Tagged With: california healthcare foundation, connected health, Katie McCurdy, Pew Internet, Quantified Self, Stanford Medicine X, Tom Ferguson, tracking, Tracking for Health

Visualize This: An e-Patient’s Medical Life History

March 18, 2012 By Susannah Fox 10 Comments

The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah. ____________________________________________________________________________  Katie’s self-crafted medical timeline (Click to enlarge; see story below) There is some recent thought that self-tracking or data gathering is “a manifestation of […]

Filed Under: e-patient stories, e-pts resources, featured commenters Tagged With: Katie McCurdy

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24
  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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