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Susannah Fox

I help people navigate health and technology.

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Gilles Frydman

Wow! How? For Love & Life

June 4, 2024 By Susannah Fox Leave a Comment

Movie poster: For Love and Life: No Ordinary Campaign. Amazon Prime May 28. Two people embrace, smiling, looking up.

This essay is part of my LinkedIn newsletter series: Wow! How? Health. Brian Wallach and Sandra Abrevaya brought their second daughter home on the same day that he received a devastating diagnosis: amyotrophic lateral sclerosis (ALS). Brian was told he had six months to live. Seven years later, Brian is still alive. He and Sandra […]

Filed Under: Champions, Networkers Tagged With: ALS, Amy Tenderich, Anthony Carbajal, Brian Wallach, Casey Quinlan, diabetesmine, Elizabeth Jameson, Gilles Frydman, I AM ALS, Jamie Heywood, Katie McCurdy, Maggie Whittum, Michael Graves, Pictal Health, Rebel Health, Sandra Abrevaya, Stephen Heywood, Synapticure, Wow! How? Health, Yoko Sen

Public Q&A: “I received scary test results. What questions should I ask my clinician?”

March 26, 2024 By Susannah Fox 8 Comments

Questions marks painted on pavement

Sometimes the hardest part of a new situation, in any aspect of life but particularly our health, is saying out loud the scary thing. Someone dear to me received concerning test results and asked me to help craft a set of questions for their next appointment – the very first one since getting the results […]

Filed Under: peer-to-peer health care, public Q&A, Seekers Tagged With: David Harlow, Elizabeth Cohen, Gilles Frydman, Jennifer Sweeney, Jessie Gruman, Rebel Health, Seekers

Artists of health care

September 4, 2018 By Susannah Fox 41 Comments

Naked Barbie doll with six sets of pliers clamped to her left leg

I have found that we can anticipate the future by paying attention to artists. Like hackers, artists bend tools until they break and ask, “Why CAN’T I do that?” They push the edges of any field they find themselves in. Autodesk, which makes software for people who make things, created the Pier 9 Residency Program to […]

Filed Under: beauty and wonder Tagged With: Anatomical Element, Anthony Carbajal, art, Autodesk, Doug Lindsay, Elizabeth Jameson, Gilles Frydman, Jennifer Berry, Maggie Whittum, Regina Holliday, Spoon Theory, Stanford Medicine X, Yoko Sen

Twitter: filter, suggestion box, idea machine, window

October 18, 2010 By Susannah Fox 20 Comments

On Friday I dashed off this tweet: PhD student just asked me which journals I read to stay up to date on health + tech. My answer: Twitter. It was classic RT bait and indeed it was echoed dozens of times by fellow Twitter geeks — more than any other tweet I’ve written.  But I […]

Filed Under: trends & principles Tagged With: #HeLa, Alex Howard, Andre Blackman, Brian Ahier, danah boyd, E-Patient Dave, Gilles Frydman, Jane Sarasohn-Kahn, Kent Bottles, Mark Hawker, Mothers with Cancer, Nejm, P.F. Anderson, Pew Internet, Stowe Boyd, Tim O'Reilly, Twitter, Wendy Sue Swanson

Health Geek Tip: Abstracts are ads. Read full studies when you can.–Susannah Fox

June 16, 2010 By Susannah Fox 16 Comments

Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you:

Filed Under: research issues Tagged With: cancer, Gary Schwitzer, Gilles Frydman, HealthNewsReview, Ivan Oransky, national cancer institute, Wikipedia

Superheroes and rock stars at the Institute of Medicine

October 14, 2009 By Susannah Fox 7 Comments

Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was captured in a short video. ___________________ The Institute of Medicine’s recent […]

Filed Under: key people, Why PM Tagged With: ACOR, Amy Abernethy, Annals Of Internal Medicine, Carolyn Clancy, Chordoma, Clinical Trials, Dartmouth, Emory, Gilles Frydman, Institute Of Medicine, Jamie Heywood, learning health system, Lynn Etheredge, Oncology, Paul Wallace, Transparency, Vanderbilt, Youtube

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