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Susannah Fox

I help people navigate health and technology.

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Engage with Grace

Wow! How? End of life

November 23, 2023 By Susannah Fox Leave a Comment

Wow! How? Health

What if I told you that a key health care metric grew in a positive direction, from 24% to 31% in 15 years? What if I then told you that a big part of the change was driven by people inspired by personal experiences, not clinical training? Most Americans tell survey researchers they don’t want […]

Filed Under: Champions, end of life, Solvers Tagged With: Alexandra Drane, Arden O’Connor, Engage with Grace, Leigh Calabrese-Eck, Matthew Holt, Sarah Stephens Winnay, Wow! How? Health

Engage with Grace

November 22, 2023 By Susannah Fox 4 Comments

Red leaves with water droplets

Can you and your loved ones answer these questions?  1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, […]

Filed Under: shared decision making Tagged With: Alexandra Drane, Arden O’Connor, Eliza Corp, end of life, Engage with Grace, family, Leigh Calabrese-Eck, Sarah Stephens Winnay, Taylor Lorenz

Caregiver starter pack

January 31, 2023 By Susannah Fox 13 Comments

A field of sunflowers bathed in golden light

We usually don’t get to choose when to become caregivers. A crisis hits and we are dropped into a maze populated by scary monsters, like family conflict or financial ruin, and no guides. This happened to a friend of mine recently and, when her loved one’s situation stabilized, I sent her 3 things: 1. A […]

Filed Under: peer-to-peer health care Tagged With: ARCHANGELS, Atlas of Care, BJ Miller, caregivers, Engage with Grace, Rajiv Mehta, Shoshana Berger

Engage with Grace

November 23, 2022 By Susannah Fox 9 Comments

5 questions about end-of-life choices

Can you and your loved ones answer these questions? 1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, […]

Filed Under: end of life, shared decision making Tagged With: caregivers, Engage with Grace, family

Designing Peer-to-peer Health

February 10, 2022 By Susannah Fox Leave a Comment

Susannah Fox Ep 59 Design Lab with Bon Ku

“How can peer to peer connection make a healthier society? Can Amazon reviews give us fresh insight into our health? Why do on-line patient communities represent an incredible untapped resource in healthcare? How can a co-designed death give us a fuller life?” Bon Ku and I explore these questions and more in Episode 59 of […]

Filed Under: end of life, peer-to-peer health care Tagged With: Alexandra Drane, BJ Miller, Bon Ku, Engage with Grace, Jodi Ferrier, John Costik, Laurie Strongin, Nightscout, podcast, Sara Riggare, Sarah Stephens Winnay, Yoko Sen

This Thanksgiving, engage with grace

November 20, 2017 By Susannah Fox 2 Comments

The following is a repost from 2012, one of the first examples of what would become my “featured commenters” series: I want to continue the Engage with Grace blog rally by highlighting my favorite comment thread about it, from a 2010 post on e-patients.net. For me, this is what blogging is about — providing a […]

Filed Under: end of life, featured commenters Tagged With: Brian Ahier, Bryan Vartabedian, Carol Torgan, Engage with Grace, Eve Harris, Regina Holliday, Ted Eytan, Wendy Sue Swanson

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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