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Susannah Fox

I help people navigate health and technology.

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Clinical Trials

Patient Input on Clinical Trials

October 16, 2025 By Susannah Fox 2 Comments

A pipette hovers above a dozen test tubes

According to the World Health Organization, over one million clinical trials are conducted annually across the world. In 2024, the U.S. hosted approximately 20% of all trials, followed by China and India. Imagine all those thousands of patients traveling to clinics, submitting their samples, taking their treatments, and hoping that they – or those who follow […]

Filed Under: Champions, participatory research, policy issues, research issues Tagged With: caregivers, Clinical Trials, Council of Medical Specialty Societies, Innovation Network, Marion Campbell, Patient-Led Research Collaborative, Rebel Health, Stuart Nicholls, Tony Fantana, World Health Organization, Wow! How? Health

Wow! How? Cancer Treatment Innovation

May 30, 2025 By Susannah Fox Leave a Comment

A pipette hovers above a dozen test tubes

This post is the latest in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform.  When Michael Katz was diagnosed with multiple myeloma, he was fortunate to connect with someone who had recently completed treatment, the “just-in-time someone-like-me” that could guide him. He vowed to do the […]

Filed Under: Champions, Networkers, Seekers Tagged With: ACOR, cancer, Clinical Trials, International Myeloma Foundation, Mayo Clinic, Michael Katz, multiple myeloma, Rebel Health, Vincent Rajkumar, Wow! How? Health

A survey about clinical trial support groups

March 8, 2023 By Susannah Fox 3 Comments

Gloved hands administering a shot to an arm

I love talking about peer-to-peer health care, noodling over survey research questions, and meeting new people. Thanks to an introduction from Craig Lipset, I recently got to do all three. Denell Lewis is a student in the final year of her Masters of Regulatory Affairs/ Masters in Law program at the University of Pennsylvania. She […]

Filed Under: research issues Tagged With: Clinical Trials, Craig Lipset, Denell Lewis, survey

Why people participate in clinical trials: altruism and access

October 30, 2017 By Susannah Fox 3 Comments

Painting of a red landscape with people climbing a dark arrow toward the sky

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes.  Rahlyn Gossen, in response to Peer-to-peer healthcare: Crazy, crazy, crazy, obvious (2011):  By far the biggest hurdle to clinical trials recruitment is awareness. The public is generally not aware and doctors are not informing […]

Filed Under: featured commenters Tagged With: altruism, Clinical Trial Data, Clinical Trials, EHR, Regina Holliday

One voice, many inflections: HIV clinical trial communications

May 10, 2013 By Susannah Fox 14 Comments

Demographics of Twitter, Facebook, Pinterest, Instagram, Tumblr

I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]

Filed Under: participatory research, research issues, trends & principles Tagged With: AIDS.gov, Clinical Trials, HIV/AIDS, participatory research

Superheroes and rock stars at the Institute of Medicine

October 14, 2009 By Susannah Fox 7 Comments

Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was captured in a short video. ___________________ The Institute of Medicine’s recent […]

Filed Under: key people, Why PM Tagged With: ACOR, Amy Abernethy, Annals Of Internal Medicine, Carolyn Clancy, Chordoma, Clinical Trials, Dartmouth, Emory, Gilles Frydman, Institute Of Medicine, Jamie Heywood, learning health system, Lynn Etheredge, Oncology, Paul Wallace, Transparency, Vanderbilt, Youtube

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Recent Comments

  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26
  • Dave deBronkart on Patient Input on Clinical Trials: “I don’t have anything to add but I have a suggestion for the problem that trialists don’t *know* about the…” Oct 16, 14:01
  • Rufus on Hack needed: Tiny pills, trembling hands: “How about using a small piece of store bought bread? Slices of bread can be “smooshed,” and a small piece…” Oct 5, 23:48

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