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Susannah Fox

I help people navigate health and technology.

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caregivers

Caregiver Survival Guide

October 22, 2025 By Susannah Fox 6 Comments

Gen Z are Caregivers Too 27% of 18-29 year-olds report providing unpaid care to a friend or family member in the year prior to the survey.

Kat McGowan and NPR asked people: “How did caregiving change you? How do you cope with the hard parts? What have you learned that you’d like to share with others?” I was among 600+ people who answered and now their Caregiver’s Survival Guide is up — and it’s wonderful. Here’s a quote I felt in […]

Filed Under: peer-to-peer health care Tagged With: ARCHANGELS, Atlas of Care, caregivers, npr, SSRS

Patient Input on Clinical Trials

October 16, 2025 By Susannah Fox 2 Comments

A pipette hovers above a dozen test tubes

According to the World Health Organization, over one million clinical trials are conducted annually across the world. In 2024, the U.S. hosted approximately 20% of all trials, followed by China and India. Imagine all those thousands of patients traveling to clinics, submitting their samples, taking their treatments, and hoping that they – or those who follow […]

Filed Under: Champions, participatory research, policy issues, research issues Tagged With: caregivers, Clinical Trials, Council of Medical Specialty Societies, Innovation Network, Marion Campbell, Patient-Led Research Collaborative, Rebel Health, Stuart Nicholls, Tony Fantana, World Health Organization, Wow! How? Health

Caregiving in America

September 25, 2025 By Susannah Fox 2 Comments

Caregiving is a universal experience cutting across all demographic lines, including political party affiliation

I am thrilled to share results from my collaboration with SSRS and ARCHANGELS, “Caregiving in America: The Common Thread in Every Community.” Here are excerpts from our report: Our nationally representative sample of n=2,012 U.S. adults finds that in the year prior to the survey, 36 percent of Americans provided unpaid care to a family […]

Filed Under: demographics, peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, caregivers, SSRS

Wow! How? Community

August 29, 2025 By Susannah Fox 1 Comment

A large group of people of all ages looking up at a camera

Vicki McCarrell had always dreamed of becoming a mother. When she gave birth at age thirty-eight to her son Sean, life seemed complete. Yes, he had the full facial paralysis typical of Moebius syndrome, but otherwise, he looked perfect to her. Indeed, at the hospital near her home in Van Nuys, California, she was given […]

Filed Under: Networkers, Seekers Tagged With: caregivers, Kathleen Bogart, Lori Thomas, Moebius Syndrome, peer-to-peer healthcare, Rare Disease, Rebel Health, Vicki McCarrell, Wow! How? Health

Rebel Health on The Nocturnists

February 13, 2025 By Susannah Fox Leave a Comment

Illustration of a human figure holding a stethoscope. The words The Nocturnists appears at center.

Today is the one-year anniversary of the publication of my book, Rebel Health. To celebrate, I am inviting you to listen to my favorite conversation about why I wrote it and what lessons we can all draw from the patient-led revolution. Emily Silverman, MD, is the host of The Nocturnists. She suggested that I start […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: AA, ACT-UP, Barbara Spindel, Black Panther Party, caregivers, diabetes, Emily Silverman, Hhs, La Leche League, MIT Press, Parkinson's, Pew Research Center, podcast, Rare Disease, rare diseases, Rebel Health, The Nocturnists, Tom Ferguson

Find a bit of beauty in the world today

September 22, 2024 By Susannah Fox 9 Comments

A bee rests in the middle of a basil plant

Find a bit of beauty in the world today.Share it.  If you can’t find it, create it.Some days this may be hard to do.Persevere. – Lisa Bonchek Adams Today would have been the 92nd birthday of my “third grandfather,” Mitsuru Yasuhara. One of my goals for his final weeks was to spark joy at least […]

Filed Under: beauty and wonder, end of life Tagged With: caregivers, family, hospice, Lisa Bonchek Adams

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Thank you, Nina! When my loved one and I were forging our care relationship one of my stipulations was that…” Oct 26, 16:28
  • Nina Mayes on Caregiver Survival Guide: “To my fellow caregivers: Give yourself permission to ask for help. Give yourself permission to receive help. Be relentless about…” Oct 26, 15:36
  • Alex on Wow! How? Psychedelic Outlaws: “This is such a thoughtful article — I especially appreciated the way you connected the science with real-world experiences. In…” Oct 26, 01:32

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