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Susannah Fox

I help people navigate health and technology.

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caregivers

Caregiving in America

September 25, 2025 By Susannah Fox 2 Comments

Caregiving is a universal experience cutting across all demographic lines, including political party affiliation

I am thrilled to share results from my collaboration with SSRS and ARCHANGELS, “Caregiving in America: The Common Thread in Every Community.” Here are excerpts from our report: Our nationally representative sample of n=2,012 U.S. adults finds that in the year prior to the survey, 36 percent of Americans provided unpaid care to a family […]

Filed Under: demographics, peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, caregivers, SSRS

Wow! How? Community

August 29, 2025 By Susannah Fox 1 Comment

A large group of people of all ages looking up at a camera

Vicki McCarrell had always dreamed of becoming a mother. When she gave birth at age thirty-eight to her son Sean, life seemed complete. Yes, he had the full facial paralysis typical of Moebius syndrome, but otherwise, he looked perfect to her. Indeed, at the hospital near her home in Van Nuys, California, she was given […]

Filed Under: Networkers, Seekers Tagged With: caregivers, Kathleen Bogart, Lori Thomas, Moebius Syndrome, peer-to-peer healthcare, Rare Disease, Rebel Health, Vicki McCarrell, Wow! How? Health

Rebel Health on The Nocturnists

February 13, 2025 By Susannah Fox Leave a Comment

Illustration of a human figure holding a stethoscope. The words The Nocturnists appears at center.

Today is the one-year anniversary of the publication of my book, Rebel Health. To celebrate, I am inviting you to listen to my favorite conversation about why I wrote it and what lessons we can all draw from the patient-led revolution. Emily Silverman, MD, is the host of The Nocturnists. She suggested that I start […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: AA, ACT-UP, Barbara Spindel, Black Panther Party, caregivers, diabetes, Emily Silverman, Hhs, La Leche League, MIT Press, Parkinson's, Pew Research Center, podcast, Rare Disease, rare diseases, Rebel Health, The Nocturnists, Tom Ferguson

Find a bit of beauty in the world today

September 22, 2024 By Susannah Fox 9 Comments

A bee rests in the middle of a basil plant

Find a bit of beauty in the world today.Share it.  If you can’t find it, create it.Some days this may be hard to do.Persevere. – Lisa Bonchek Adams Today would have been the 92nd birthday of my “third grandfather,” Mitsuru Yasuhara. One of my goals for his final weeks was to spark joy at least […]

Filed Under: beauty and wonder, end of life Tagged With: caregivers, family, hospice, Lisa Bonchek Adams

Public Q&A: My 5 favorite books on how to defend yourself against the U.S. health care system

May 24, 2024 By Susannah Fox 2 Comments

4 books: A Beginners' Guide to the End; Josie's Story; AfterShock; The Long Covid Survival Guide

Shepherd.com invites authors to write heartfelt reviews of other people’s books on a topic related to their own work. The site is a rabbit hole that you will LOVE exploring, so go ahead and click on, for example, “The best books about America’s toughest time: life in the dirty thirties” or “The best children’s books […]

Filed Under: key people, public Q&A Tagged With: BJ Miller, books I love, caregivers, end of life, Fiona Lowenstein, Jessie Gruman, Long Covid, Muriel Gillick, Shoshana Berger, Sorrel King

Discovery Diaries with Damon Davis

May 16, 2024 By Susannah Fox Leave a Comment

Rebel Health: A field guide to the patient-led revolution in medical care

Damon Davis has a new podcast, Discovery Diaries, and I was honored be among his first guests. We got into a wide range of topics: the origins of my interest in patient-led innovation; artificial intelligence and how patients, survivors, and caregivers should be included in the design of AI tools; our time working together at […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: AA, Ben West, Black Panther Party, Bryan Mazlish, caregivers, Damon Davis, Dana Lewis, diabetes, E-Patient Dave, Fda, food allergy, Hhs, Hugo Campos, Jane Sarasohn-Kahn, peer-to-peer healthcare, Regina Holliday

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Recent Comments

  • James on Wow! How? Obesity Treatment: “Inspiring read! Ilant Health’s holistic, shame-free approach to obesity care is exactly what’s needed to address a complex condition with…” Sep 30, 01:23
  • Susannah Fox on Caregiving in America: “I hear you, Mickey! You likely already know about Caring Across Generations and other organizations that have tried to move…” Sep 25, 14:51
  • Mickey Alderman on Caregiving in America: “Interesting information. Being unpaid is a huge issue that has been ongoing for decades. The question we keep asking is…” Sep 25, 10:42

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