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Susannah Fox

I help people navigate health and technology.

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breast cancer

Should peer health community moderators get paid?

September 2, 2021 By Susannah Fox 29 Comments

Sandhill cranes taking flight at sunrise

Evidence is piling up in favor of peer health communities. The question is: How do we sustain them for the long-term? Here are 3 studies (of many) about the benefits of peer-to-peer health advice: A survey of the #bcsm community found that participation lowered people’s anxiety and increased their overall knowledge of breast cancer. A survey of […]

Filed Under: key people, patient networks, peer-to-peer health care Tagged With: #bcsm, breast cancer, CGM in the Cloud, Deanna Attai, diabetes, epilepsy, patientslikeme

Celebrating #BCSM as a peer health innovation

August 20, 2021 By Susannah Fox 6 Comments

A man and woman walking on a trail

Cancer patients were among my first peer health innovation teachers and remain, years later, among my favorite communities to follow. I keep an eye out for hashtags like #gyncsm (gynecological cancer social media), #bcsm (breast cancer social media), and #lcsm (lung cancer social media) on Twitter. I listen to podcasts like The Cancer Mavericks (and […]

Filed Under: e-patient stories, Networkers, patient networks, peer-to-peer health care, pts as teachers Tagged With: #bcsm, #gyncsm, #hcsm, #lcsm, Alexandra Drane, Alicia Stales, breast cancer, Dana Lewis, Deanna Attai, Elizabeth O'Riordan, Jodi Sperber, Jody Schoger, Leslie Schover, Matthew Zachary, peer health innovation, Trisha Greenhalgh, Unmentionables

Case study: Breast cancer

December 7, 2020 By Susannah Fox 16 Comments

Sunflower in a field of other sunflowers

When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us.  That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: breast cancer, case study, peer-to-peer healthcare, sunflowers

The New York Times: “Sometimes Patients Simply Need Other Patients”

July 9, 2018 By Susannah Fox 1 Comment

Screen Shot of the NYT Upshot column on July 9 2018

Aaron E. Carroll and Austin Frankt co-wrote an excellent article about peer-to-peer health care in The New York Times today. An excerpt: In an ideal world, when we are faced with a new health problem, a clinician is available to sit down and address all our questions and anxieties about the condition and its treatment. […]

Filed Under: peer-to-peer health care Tagged With: breast cancer, diabetes, life-threatening illness, New York Times, Peer To Peer, peer-to-peer healthcare

Ribbons, ribbons, everywhere

April 28, 2013 By Susannah Fox Leave a Comment

Ribbon shape on wall

Peggy Orenstein‘s article, “Our Feel-Good War on Breast Cancer,” is worth one of your precious NYTimes.com chits (unless, of course, you’re a subscriber, in which case you have hopefully already devoured it). But don’t just take my word for it, read this post by Katherine O’Brien of the Metastatic Breast Cancer Network — the bloggers […]

Filed Under: policy issues, research issues Tagged With: breast cancer, cancer, New York Times, Peggy Orenstein

Stress: the New Normal for Cancer Patients?–Susannah Fox

May 2, 2009 By Susannah Fox 4 Comments

Deborah Bell is actively involved in cancer advocacy and manages several online communities for cancer patients, their families, and their friends, having been an ACOR listowner for 11 years, and a listmember for 13. She contributed the following essay: I know a 15-year breast cancer survivor who was just diagnosed with a recurrence in the […]

Filed Under: e-patient stories Tagged With: 11 Years, ACOR, breast cancer, Breast Cancer Survivor, Cancer Advocacy, Cancer Patients, Cancer Survivors, Chemo, Daycare, Deborah Bell, Life In The Usa, Lumpectomy, Major Illness, Mastectomy, Recurrence, Recurrences, Respite, State Of Affairs, stress, Stressor, Stressors, Way Of Life

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24
  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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