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Susannah Fox

I help people navigate health and technology.

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Bon Ku

Designing Peer-to-peer Health

February 10, 2022 By Susannah Fox Leave a Comment

Susannah Fox Ep 59 Design Lab with Bon Ku

“How can peer to peer connection make a healthier society? Can Amazon reviews give us fresh insight into our health? Why do on-line patient communities represent an incredible untapped resource in healthcare? How can a co-designed death give us a fuller life?” Bon Ku and I explore these questions and more in Episode 59 of […]

Filed Under: end of life, peer-to-peer health care Tagged With: Alexandra Drane, BJ Miller, Bon Ku, Engage with Grace, Jodi Ferrier, John Costik, Laurie Strongin, Nightscout, podcast, Sara Riggare, Sarah Stephens Winnay, Yoko Sen

What if your clinician gave you a prescription to check out a patient group that they knew to be good?

February 12, 2020 By Susannah Fox 44 Comments

Post-it notes fill one section of a diagram

Amy Gleason (@ThePatientsSide) captured this line of mine, delivered on a panel at the Health Datapalooza yesterday. Her tweet generated an interesting cascade of reactions ranging from: “This is potentially dangerous” to “This is obvious (and old news).” I thought I’d expand on my observations and see if people want to expand on theirs in […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: ACOR, Bon Ku, Danny Sands, David Fajgenbaum, E-Patient Dave, Health Datapalooza, peer-to-peer healthcare

Chasing cures

September 10, 2019 By Susannah Fox 7 Comments

CHASING MY CURE book cover

Years ago, I met a mom of a child with a rare disease who matter-of-factly shared her story, which included as many twists and close calls as any blockbuster summer movie. I marveled at her heroism and she said no, she rejects that description. “I’m not a hero,” she insisted. “I’m a typical mom. You […]

Filed Under: e-patient stories, key people, positive patterns Tagged With: Abby Norman, Afternoon Napper, Bon Ku, Dana Lewis, David Fajgenbaum, Doug Lindsay, Rare Disease, rare diseases, Sharon Terry, Terry Jo Bichell

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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