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Susannah Fox

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Search Results for: internet access

Speak up: The network is our superpower

March 13, 2015 By Susannah Fox 5 Comments

I have a new post up on Medium, illustrated with this gem from a 2012 post: An excerpt: We can’t let misinformation—or worse—go by without comment. I think it’s time for more people to speak up in health care. More pediatricians should express their measles outrage. More people should chronicle the reality of living with chronic conditions.

Filed Under: ethics, research issues, trends & principles, understanding statistics Tagged With: Pew Research Center, Stanford Medicine X

What health care can learn from Mike Mulligan and his steam shovel

February 13, 2015 By Susannah Fox 8 Comments

Google is upgrading health search…again. In 2010, I was inspired by Animal Farm to write that Google saw some health sites as more equal than others. This time I turned to Mike Mulligan and his Steam Shovel, by Virginia Lee Burton.

Filed Under: positive patterns, reforming hc, trends & principles Tagged With: #bcsm, #whatifhc, Apple, cystic fibrosis, Erin Moore, Google, HealthKit, Hugo Campos, IBM Watson, Iodine, multiple sclerosis, patientslikeme, Quantified Self, Rare Disease, Smart Patients, Stanford Medicine X

Find your people

January 24, 2015 By Susannah Fox 9 Comments

Look Beyond Face Value: Moebius Syndrome Awareness Day

Longtime readers will recognize this story, but I’m posting it again here–and on Medium–to honor Moebius Syndrome Awareness Day: When Burt Minow was born in 1922, his disability — partial hearing loss and complete facial paralysis—was immediately apparent. His mouth was frozen in a sort of frown, and he could not suck on a nipple to get […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: Burt Minow, Moebius Syndrome, Nell Minow, peer-to-peer healthcare

Save us, Facebook

November 20, 2014 By Susannah Fox 24 Comments

Erin and Drew

The Reuters story about Facebook taking its “first steps into healthcare” read like an announcement that Las Vegas was getting into entertainment or that New York City was getting into fashion. Extraordinary health communities have grown up between the cracks of Facebook’s platform. It’s just that up until now executives publicly looked the other way. […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: cystic fibrosis, Erin Moore, Facebook, Inspire, mitochondrial disease, patientslikeme, Smart Patients

Public Q&A: How to support an introvert in an increasingly connected world?

November 13, 2014 By Susannah Fox 31 Comments

All signs point to a social revolution in health. As I’ve put it, the internet gives us access not only to information, but also to each other. Crucial advice can come from a just-in-time someone-like-you as well as from a clinician. So what happens to people who are shy or introverted? If sharing and learning […]

Filed Under: e-pts resources, end of life, patient networks, peer-to-peer health care, public Q&A

Data for health

November 4, 2014 By Susannah Fox Leave a Comment

Last week I was part of the first community meeting for Data for Health, a program sponsored by the Robert Wood Johnson Foundation. It was held in Philadelphia on October 30 (an absolutely beautiful fall day). You can catch up on the #data4health tweets thanks to Symplur — and there were some good ones: Some themes of #Data4Health: […]

Filed Under: health data, policy issues, trends & principles Tagged With: #data4health, Health Data, Health Data Rights, Office of the National Coordinator for Health Information Technology, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

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