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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

Assessing the quality of peer health advice

August 12, 2019 By Susannah Fox 37 Comments

Trust

“Can you really trust what you read online?” is a frequent (and valid) question about online health information, particularly peer to peer advice. People who are part of healthy peer communities sometimes scoff at the question since they see so much good coming from the opportunity to connect and share information. But how might we […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Information Quality, John Grohol, peer-to-peer healthcare, Trustworthiness

A Matter of Trust, Perception, Risk, and Uncertainty

July 1, 2019 By Susannah Fox 18 Comments

Black and white image that resembles a Rorschach ink blot

The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust -A […]

Filed Under: health data, news & gossip, patient networks, peer-to-peer health care, policy issues Tagged With: ALS, Jane Sarasohn-Kahn, Lisa Suennen, patientslikeme, Trustworthiness

We need a digital health Cajun Navy

June 10, 2019 By Susannah Fox 8 Comments

A baby with red spots on their face looks straight at the camera

The Cajun Navy – people who rally their personal boats to rescue hurricane survivors – is an example of how ordinary citizens are the true first responders in a disaster zone. Instead of seeing locals as liabilities, the Federal Emergency Management Agency has started looking for ways to support their work. As David Graham wrote in The Atlantic: […]

Filed Under: hc's problem list, peer-to-peer health care, social media Tagged With: Cajun Navy, immunizations, measles, peer-to-peer healthcare, Wendy Sue Swanson

“Human stories really are what drive us…”

May 22, 2019 By Susannah Fox 2 Comments

Stanford Medicine X stage

The more we open access to the data, information, and tools people need to solve their own problems, the better. That’s the essential message of the research and consulting I’m engaged in these days, helping leaders to see the opportunities that spring, for example, from tapping into the zeitgeist of social platforms and new data […]

Filed Under: key people, peer-to-peer health care, positive patterns Tagged With: #wearenotwaiting, Dana Lewis, diabetes, Health Data, HopeLab Foundation, OpenAPS, teens, Vicky Rideout, Well Being Trust

Better health, together

May 13, 2019 By Susannah Fox 2 Comments

Peer to peer health advice: your community may really be your superpower

InquisitHealth is a company that truly understands that health is social. They are able to knit people and best practices together to create “better health, together.” What an inspiring story they share in this video about peer to peer health care! (If you are an email subscriber, be sure to click through to see this video […]

Filed Under: peer-to-peer health care Tagged With: diabetes, InquisitHealth, peer-to-peer healthcare

Half of 18- to 22-year-olds seek peer health advice online

April 22, 2019 By Susannah Fox 4 Comments

Man's hand holding a mobile phone with coffee cup in foreground

A 2018 national survey by Hopelab and Well Being Trust uncovered an astonishing finding: Fully half (51%) of 18- to 22-year-olds say they have tried to find people online with health concerns similar to their own. That is double the percentage of teens (14- to 17-year-olds) who reported doing this activity and it’s much higher […]

Filed Under: demographics, peer-to-peer health care Tagged With: addiction, Breast Cancer Survivor, cancer, diabetes, diet, fitness, HopeLab Foundation, mental health, pregnancy, STIs, Vicky Rideout, Well Being Trust

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Great question! When the downhill run toward discharge began for Mitsuru, he had been in the hospital for about 10…” Oct 23, 10:46
  • Dave deBronkart on Caregiver Survival Guide: “As I age and see my lifelong peers start to decline, this brings tears to my eyes. Thank you again.…” Oct 22, 10:17
  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26

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