Atul Gawande can shine a bright spotlight, even with just a few tweets. On Saturday he linked to an article about new social media guidelines for physicians which states: Aside from not “friending” patients [on Facebook], the guidelines also recommend the following to physicians: • Don’t use text messaging for medical interactions, even with established […]
key people
Who provides the fuel for the health data fire? Hint: Look in the mirror.
“If iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday New York Times, “Letting Down Our Guard With Web Privacy.” I think personal data is fueling health […]
Rare Disease Day 2013
People living with rare conditions inspire my work every day. A few resources to check out: Follow @RareDiseaseDay on Twitter or subscribe to my Rare Disease list Read Wendy White’s post on e-patients.net: Rare Disease Day 2013: Help Spread Awareness Read the Pew Research Center’s report featuring insights from people living with rare conditions: Peer-to-peer […]
Tell all the truth but tell it slant
Scanning tweets from the current Institute of Medicine event (#iomPwP) brought a poem to mind: Tell all the Truth but tell it slant — Success in Circuit lies Too bright for our infirm Delight The Truth’s superb surprise As Lightning to the Children eased With explanation kind The Truth must dazzle gradually Or every […]
The Kojo Nnamdi Show
I love call-in radio shows, listening to them and (dream come true) being a guest on them.* Listeners never fail to amaze me with their insights and ideas. Today I was on the Kojo Nnamdi Show’s Tech Tuesday with Rahul Parikh, MD, to discuss “Dot Com v. MD: Health Advice & Resources Online.” We filled […]
What if we could hack happiness?
One of the best phone calls I had in 2012 was with John Havens, who has written about the value of a happiness economy and how big data can make us happier and healthier. It reminded me of the “what if health care…?” conversations I was part of on Twitter this year: dreaming big, wishing […]
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