Last week I was part of the first community meeting for Data for Health, a program sponsored by the Robert Wood Johnson Foundation. It was held in Philadelphia on October 30 (an absolutely beautiful fall day). You can catch up on the #data4health tweets thanks to Symplur — and there were some good ones: Some themes of #Data4Health: […]
Who is ready to stand naked in front of the mirror of data?
In this talk at the Quantified Self Public Health symposium, I argue that we must respect the context of people’s lives while designing health interventions, tools, and research projects. Not everyone is ready to stand naked in front of the bright light of numbers on a screen. Let’s be gentle in our approach, especially to […]
Health Datapalooza turns 5 (going on 15)
In my opening remarks for Health Datapalooza‘s final day, I tried to strike notes of “welcome!” and “let’s get real.” The adolescent meme got picked up, but without much context, so I thought I’d share what I said: The Datapalooza is five years old, but we are way past the kindergarten stage, when people outside the movement […]
“Privacy leaves the room when cancer enters.”
– John Wilbanks talking about unintended consequences of informed consent. Read a summary of his talk and a clarification.
What’s the future for self-tracking?
Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users age 18+ track their own health data online. There […]
An ode to health data rights
Fun for Friday: David Hale singing an ode inspired by Regina Holliday and e-Patient Dave: