• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

health data

Under the right conditions, people will choose the path of information altruism

October 16, 2017 By Susannah Fox 20 Comments

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. This comment was posted in 2011 and I’m featuring it now because it is an example of how we, as a health data community, have been — and need to continue — discussing a power […]

Filed Under: featured commenters, health data Tagged With: Health Data

The everyday life of the individual is a rich source of information

September 11, 2017 By Susannah Fox Leave a Comment

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Ian Eslick, in response to Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious. (2011) There are many kinds of information that can be gleaned through the lens of science, and not all of them need to be the […]

Filed Under: featured commenters, health data Tagged With: Health Data

The Value of Data

April 15, 2015 By Susannah Fox 9 Comments

Patient Records by ken fager on flickr

Health care is in danger of missing the point. (A repost from 2014 that’s relevant today thanks to announcements at HIMSS.) In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at U.S.News saw an opportunity […]

Filed Under: hc's problem list, health data, medical records, trends & principles Tagged With: big data, E-Patient Dave, Health Data, Health Data Rights, Health Datapalooza, John Halamka, Paul Levy, SMARTHealthIT

Data for health

November 4, 2014 By Susannah Fox Leave a Comment

Last week I was part of the first community meeting for Data for Health, a program sponsored by the Robert Wood Johnson Foundation. It was held in Philadelphia on October 30 (an absolutely beautiful fall day). You can catch up on the #data4health tweets thanks to Symplur — and there were some good ones: Some themes of #Data4Health: […]

Filed Under: health data, policy issues, trends & principles Tagged With: #data4health, Health Data, Health Data Rights, Office of the National Coordinator for Health Information Technology, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

Who is ready to stand naked in front of the mirror of data?

July 29, 2014 By Susannah Fox Leave a Comment

In this talk at the Quantified Self Public Health symposium, I argue that we must respect the context of people’s lives while designing health interventions, tools, and research projects. Not everyone is ready to stand naked in front of the bright light of numbers on a screen. Let’s be gentle in our approach, especially to […]

Filed Under: health data, trends & principles Tagged With: california healthcare foundation, caregivers, chronic disease, Google Poetics, Health Data, Pew Research Center, QSPH, Quantified Self, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

Health Datapalooza turns 5 (going on 15)

June 6, 2014 By Susannah Fox 2 Comments

Susannah Fox on screen at the Datapalooza - Photo by @CarlyRM

In my opening remarks for Health Datapalooza‘s final day, I tried to strike notes of “welcome!” and “let’s get real.” The adolescent meme got picked up, but without much context, so I thought I’d share what I said: The Datapalooza is five years old, but we are way past the kindergarten stage, when people outside the movement […]

Filed Under: health data, positive patterns, trends & principles Tagged With: Health Data, Health Datapalooza

  • « Go to Previous Page
  • Go to page 1
  • Interim pages omitted …
  • Go to page 5
  • Go to page 6
  • Go to page 7
  • Go to page 8
  • Go to page 9
  • Go to Next Page »

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

Copyright Susannah Fox © 2025 · WordPress · Log in