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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Examples, please: peer-to-peer healthcare

June 27, 2011 By Susannah Fox 83 Comments

I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with […]

Filed Under: net-friendly docs, patient networks Tagged With: asthma, Behavior Change, Bonus Points, caregivers, Clinical Practices, Clinicians, Facebook, Health Groups, High Blood Pressure, Macarthur, National Organization For Rare Disorders, Networking Tools, Notoriety, Ob Gyn, Peer To Peer, Population Level, Powerful Resources, Social Networking, Twitter, Weight Watchers, Writ

Two roads ahead: “I fear to be a patient” vs. “Opportunities for Patient-Clinician Partnership”–Susannah Fox

June 17, 2011 By Susannah Fox 8 Comments

Treat yourself to 3 minutes of Don Berwick’s 2009 speech on patient-centered care, which at a certain point becomes an elegy: Now cheer yourself up with the latest article from the Journal of Participatory Medicine: “The Cancer Supportive Care Model: A Patient-Partnered Paradigm Shift in Health Care Delivery,” by Elias Anaissie and Tara Mink.

Filed Under: e-patient stories, hc's problem list, JoPM, Why PM

Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.

May 25, 2011 By Susannah Fox 103 Comments

Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize that knowledge to make it useful for as many people as possible. An idea whose time […]

Filed Under: participatory research, peer-to-peer health care, trends & principles Tagged With: altruism, Children's Hospital Boston, Ian Eslick, Kevin Kelly, MIT Media Lab, patientslikeme, peer-to-peer healthcare, Pew Internet, Quantified Self, TuDiabetes

The Social Life of Health Information, 2011–Susannah Fox

May 12, 2011 By Susannah Fox 36 Comments

Here it is: my 2010-11 yearbook! Will you sign it? That’s how I feel about this latest report from the Pew Internet Project and the California HealthCare Foundation: “The Social Life of Health Information, 2011.”  It contains all the insights we’ve gathered over the last year on mobile health, the health information divide, and peer-to-peer […]

Filed Under: general, trends & principles Tagged With: california healthcare foundation, Pew Internet

Map the frontier. Bring data. (More coming soon!)–Susannah Fox

May 11, 2011 By Susannah Fox Leave a Comment

The Pew Internet Project and California HealthCare Foundation will released our latest report on the internet’s impact on health and health care tonight at midnight (Eastern U.S. time). It is titled, “The Social Life of Health Information, 2011” (and for those following closely, that is a hint that we are updating trends we first measured […]

Filed Under: general, trends & principles Tagged With: california healthcare foundation, Mobile Health, Pew Internet

ISO: Randomized Trials–Susannah Fox

April 13, 2011 By Susannah Fox 10 Comments

I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health care, cancer screening, diabetes care, etc)? My answer: I haven’t done a […]

Filed Under: found on the net Tagged With: Cancer Screening, diabetes, Diabetes Care, email, Health Org, Innovations, Innovators, Iso, Literature Search, Networking Web, Ocs, Patient Level, Preventive Health Care, Randomized Trials, Researcher, Social Networking, Variables

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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