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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Health Info Have-Nots

October 18, 2011 By Susannah Fox 15 Comments

I just published a quick take on who doesn’t gather health information online, including the stark finding that three-quarters of U.S. adults who have less than a high school education say they do not get health information online. One survey question I cited dates back to 2002, but I think it is still interesting. Here’s […]

Filed Under: found on the net Tagged With: Adults, Heading, Health And Medical Information, Health Info, health information, Health Issues, Health Medical, Health Online, High School Education, Internet Health Resources, Internet Users, Medical Issues, Nots, Report Internet, Survey Question, Three Quarters

Conference Season: Patients and Caregivers Welcome

October 4, 2011 By Susannah Fox 6 Comments

We are deep into the fall conference season. One of my favorite trends is the increasing rate of inclusion of patients and caregivers at health care events, on stage or in the audience. The California HealthCare Foundation was a pioneer in this regard. Patients 2.0, an off-shoot of Health 2.0, and e-Patient Connections represent a […]

Filed Under: positive patterns Tagged With: california healthcare foundation, conferences, connected health, e-patient connections, health 2.0, medicine 2.0, patients 2.0

Peer-to-peer Healthcare at Medicine 2.0

September 23, 2011 By Susannah Fox 26 Comments

Painting of a woman and two children

This post was published in 2011 and the themes ring true today. Only the survey data is out of date. For updated technology adoption trends, follow @PewInternet or refer to their fact sheets. A 2018 national survey found that half of young adults seek peer health advice online.  I was honored to give the closing […]

Filed Under: general, peer-to-peer health care, trends & principles Tagged With: peer-to-peer healthcare, Pew Internet, Stanford Medicine X

When Patients Band Together: Far From a Disgrace

September 8, 2011 By Susannah Fox 23 Comments

When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a very nice piece in the Wall Street Journal about how […]

Filed Under: patient networks, pt/doc co-care Tagged With: Advocates, Cardiologist, Mainstream Media, Mayo Clinic, patient groups, Patient Network, Peer To Peer, Rare Disease, rare diseases, Roadblocks, Ron Winslow, Scad, Universal Health Care, Using Social Networks, Virtual Registry, Wall Street Journal

Help Me Choose: Sessions at Medicine 2.0–Susannah Fox

August 31, 2011 By Susannah Fox 4 Comments

In 2008, I asked for this community’s help in choosing which sessions to attend at the Chronic Disease Care conference sponsored by the California HealthCare Foundation. I loved the input I got and wrote 3 posts on what I learned about spreading improvement in care, how to include patient voices, and how to discuss emerging […]

Filed Under: found on the net

Mind the Gap: Peer-to-peer Healthcare–Susannah Fox

August 1, 2011 By Susannah Fox 1 Comment

Update: My notes are now online: Mind the Gap: Peer-to-peer HealthCare. The newest material is in the section entitled, “Getting Past the Early-Adopter Stage” — roadblocks, opportunities, and beacons for change (patient leaders, clinician leaders, and technology leaders). Not surprisingly, the NIH audience members suggested adding “policy leaders” to that lineup. It was an extraordinarily […]

Filed Under: positive patterns, trends & principles

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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