“People who think that people with disabilities can’t do anything, that we’re fragile and in need. People who think we are inspirational and think we can fly to the moon if we wanted to. People who treat us like everyone else, who know that we’ll ask for help if we need it but otherwise we’re […]
Participatory Research
I can’t imagine conducting research, especially about the internet, without welcoming people into the process, so I wrote up some examples of how I use social tools in my work.
“Fall in love with your hypothesis, and then try to kill it.”
– Rosie Redfield on how to pursue good science (vs. the other way). It’s a good mantra for me this week, writing about caregivers (I had a theory that they use the internet differently and I was right, but not as right as I’d hoped to be) and formulating the next Pew Internet health survey […]
“Privacy leaves the room when cancer enters.”
– John Wilbanks talking about unintended consequences of informed consent. Read a summary of his talk and a clarification.
Data Mote in the Garden
Peer-to-peer health care in 5 minutes or less
This is a highlight reel of my keynote at last year’s Medicine 2.0 conference. I’ll be speaking at Medicine 2.0 Boston on Sept. 15 to discuss patient-provider collaboration for patient safety.
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