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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Slow down

February 6, 2015 By Susannah Fox 4 Comments

Illustration of a person looking up at a bird feeding its baby in a nest while people rush around below. Words on a bench read: Slow Down

Juhan Sonin and his team at Involution Studios capture essential health messages in cards — actual, physical cards that you can stack in a deck or lay out across a table. The front is an arresting image and the back lists evidence and tips. The cards are tactile, delightful artifacts of an ongoing conversation that Invo […]

Filed Under: beauty and wonder Tagged With: Fahd Butt, Health Axioms, Juhan Sonin, peer-to-peer healthcare, poetry

Snow day

January 27, 2015 By Susannah Fox 12 Comments

Snow day in New York City, captured by Anna Dorfman on Instagram

I’m taking advantage of the “snow day” to share what I have been reading, watching, listening to, thinking about — and I invite you to join me, even if you don’t have a snow day. (Truth be told, DC only got a couple of inches and a 2-hour delay, but humor me.) Legitimacy through public service: The […]

Filed Under: beauty and wonder, positive patterns, social media Tagged With: Anne Porter, Elizabeth Blackwell, Garrison Keillor, Gertrude Elion, Hank Green, Instagram, may I suggest, ulcerative colitis

Find your people

January 24, 2015 By Susannah Fox 9 Comments

Look Beyond Face Value: Moebius Syndrome Awareness Day

Longtime readers will recognize this story, but I’m posting it again here–and on Medium–to honor Moebius Syndrome Awareness Day: When Burt Minow was born in 1922, his disability — partial hearing loss and complete facial paralysis—was immediately apparent. His mouth was frozen in a sort of frown, and he could not suck on a nipple to get […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: Burt Minow, Moebius Syndrome, Nell Minow, peer-to-peer healthcare

Weekend update

January 17, 2015 By Susannah Fox 10 Comments

Susannah Fox's Weekend Update - credit: Andre Blackman

Last Saturday I posted a round-up of what caught my eye during the week and my friend Andre Blackman (@mindofandre) created this awesome graphic: Thus encouraged, here’s another round of what I favorited on Twitter this week: Nancy Stein (@SeniorityMatter) shared an opinion piece by Rob Lowe about long-term care planning. He’s promoting his partnership […]

Filed Under: key people, social media Tagged With: chronic pain, cystic fibrosis, Duchenne, long-term care, may I suggest, Open Access, Quantified Self, wearables

What I’m reading, listening to, admiring…

January 10, 2015 By Susannah Fox 8 Comments

Susannah at the library

I hunkered down at the library this week, working on a couple of long-term projects. I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this week: Radiolab: Worth — what would you pay for another month of life? How about a year? […]

Filed Under: beauty and wonder, maternity, positive patterns, social media Tagged With: Amy Romano, Cluetrain Manifesto, cystic fibrosis, diabetes, diabetesmine, Facebook, Kerri Sparling, may I suggest, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Wendy Sue Swanson

Let yourself in on your own secrets

December 31, 2014 By Susannah Fox 12 Comments

I respect secrets. When my grandmother died at age 96 and a half, her final words were: “Erase my email.” Why? I don’t need to know. And she is not someone you want to cross (present tense — her spirit is still here with me, urging me to live a big life.) But I am […]

Filed Under: beauty and wonder Tagged With: Alexandra Drane, Frank Warren, Meghan Daum, PostSecret, Unmentionables

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  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
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