• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

Susannah Fox

Assessing the quality of peer health advice

August 12, 2019 By Susannah Fox 37 Comments

Trust

“Can you really trust what you read online?” is a frequent (and valid) question about online health information, particularly peer to peer advice. People who are part of healthy peer communities sometimes scoff at the question since they see so much good coming from the opportunity to connect and share information. But how might we […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Information Quality, John Grohol, peer-to-peer healthcare, Trustworthiness

Public Q&A: Acronyms, protocol, and other lessons learned from switching fields

July 29, 2019 By Susannah Fox 2 Comments

summer on the track - urban photography by Filip Patock on Flickr

If you have switched career tracks, what lessons did you learn? What advice would you have for someone entering a new company, organization, or even a new culture? Here’s an excerpt from my 2016 interview with The Public Manager about working for the U.S. government: Most of your career was outside of the federal government. What have […]

Filed Under: public Q&A Tagged With: career advice, Hhs, innovation

Celebrating invention and innovation

July 15, 2019 By Susannah Fox 7 Comments

Tools by Dorli Photography on Flickr

We are going to need all the ingenuity and help we can get to untangle and improve health and health care. Everyone should have access to the data, information, and tools they need to solve problems. That includes access to each other – peer to peer. My hope is for people to look at a […]

Filed Under: positive patterns Tagged With: #InventHealth, Fda, George Hacks, Hhs, Invent Health, Lemelson Center, maker movement, prize competitions, veterans

A Matter of Trust, Perception, Risk, and Uncertainty

July 1, 2019 By Susannah Fox 18 Comments

Black and white image that resembles a Rorschach ink blot

The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust -A […]

Filed Under: health data, news & gossip, patient networks, peer-to-peer health care, policy issues Tagged With: ALS, Jane Sarasohn-Kahn, Lisa Suennen, patientslikeme, Trustworthiness

Mapping the health data landscape

June 17, 2019 By Susannah Fox 18 Comments

1490 map of the world by Henricus Marcellus shows great detail for Europe but only a rough idea of Africa and Asia

I think our understanding of the current health data landscape is about as accurate as a map of the world in the 15th century:  excruciatingly detailed in the areas we know well, but hilariously, woefully — even dangerously — incomplete when it comes to the areas of health and health care that lie beyond our […]

Filed Under: health data Tagged With: Cambia Health Solutions, electronic medical record, Health Data, Sara Riggare

We need a digital health Cajun Navy

June 10, 2019 By Susannah Fox 8 Comments

A baby with red spots on their face looks straight at the camera

The Cajun Navy – people who rally their personal boats to rescue hurricane survivors – is an example of how ordinary citizens are the true first responders in a disaster zone. Instead of seeing locals as liabilities, the Federal Emergency Management Agency has started looking for ways to support their work. As David Graham wrote in The Atlantic: […]

Filed Under: hc's problem list, peer-to-peer health care, social media Tagged With: Cajun Navy, immunizations, measles, peer-to-peer healthcare, Wendy Sue Swanson

  • « Go to Previous Page
  • Go to page 1
  • Interim pages omitted …
  • Go to page 23
  • Go to page 24
  • Go to page 25
  • Go to page 26
  • Go to page 27
  • Interim pages omitted …
  • Go to page 112
  • Go to Next Page »

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

Copyright Susannah Fox © 2025 · WordPress · Log in