• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

Archives for February 2014

Extremely rare, incredibly typical

February 28, 2014 By Susannah Fox 5 Comments

After nearly 15 years tracking the cultural shifts happening at the intersection of health and the internet, I know a few things. #1 – don’t get between a parent and a piece of information he or she needs to make a decision about the health of a child. #2 – from 28.8 modems to the latest smartphones, […]

Filed Under: peer-to-peer health care Tagged With: Rare Disease

The Web at 25

February 27, 2014 By Susannah Fox 16 Comments

My latest assignment at the Pew Research Center had nothing to do with health and health care, but everything to do with my personal history as an internet geologist. Here’s the report: The Web at 25 in the U.S. It was incredibly fun to spelunk in our survey archives, digging up the first national measures […]

Filed Under: internet geology

Hacking home health care

February 10, 2014 By Susannah Fox 57 Comments

King Arthur large baker's peel

We need to fix the “solved problems” crisis in home health care. Let me explain. At the start of Health Foo* in December, everyone introduced themselves in 6 words or less. Row by row, person by person, 100+ people talked in turn. In the back row, nearly the last to speak, Laura Baldwin stood and […]

Filed Under: end of life, key people, peer-to-peer health care Tagged With: #InventHealth, Alzheimers, caregivers, Health Foo, home health care hacks, Invent Health, Moebius Syndrome

Put down the clipboard and listen

February 7, 2014 By Susannah Fox 7 Comments

Regina Holliday Data Mote

Here are the remarks I prepared for the Feb. 6, 2014, Engage & Empower Me class at Stanford Medical School. It’s a long post, so if you’d prefer to zone out, you can watch the video. In thinking about this class, I thought a good framing question for tonight is: How does change happen? How […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Pete Seeger, Regina Holliday, Stanford Medicine X, The Walking Gallery, Tom Ferguson

Stanford Medicine X: Participatory research

February 7, 2014 By Susannah Fox 3 Comments

Brett Alder and I spoke last night at Stanford Medical School’s Engage & Empower Me class: Today is a travel day for me, back to the East Coast, so any comments posted may wait in the queue — but please let me know what you think! I’ll post more about this event when I’m home, […]

Filed Under: e-patient stories, net-friendly docs, participatory research, research issues, social media Tagged With: Stanford Medicine X

Evolution of online patient communities

February 1, 2014 By Susannah Fox 28 Comments

A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]

Filed Under: e-pts resources, patient networks Tagged With: Facebook, Smart Patients

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24

Copyright Susannah Fox © 2025 · WordPress · Log in