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Susannah Fox

I help people navigate health and technology.

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On listening, as a tool

April 8, 2013 By Susannah Fox 2 Comments

My friend Wendy Sue Swanson, MD, delivers a passionate argument for listening more than talking online and, in that way, seeing “where myth is being created” so she can better infuse her own communications with facts. I couldn’t agree more, so I’m adding it to my list of “participatory research” resources for my Stanford Medicine […]

Filed Under: net-friendly docs, participatory research Tagged With: participatory research, Wendy Sue Swanson

Shared moment

April 5, 2013 By Susannah Fox 3 Comments

This poem captures how I feel about being online sometimes, the immediacy and intimacy of a shared moment with unseen people. So, here it is, you fellow people who share: Eastern Standard Time By Billy Collins Poetry speaks to all people, it is said, but here I would like to address only those in my […]

Filed Under: beauty and wonder

Kate Crawford on algorithmic illusions

April 4, 2013 By Susannah Fox 25 Comments

I’m going to teach a 90-minute class on participatory research at Stanford Medicine X in September, so I’m going to start blogging resources I plan to incorporate (or that simply inspire me). As always, I’d welcome suggestions, comments, and questions. First up, Kate Crawford’s Strata 2013 talk about “big data”:

Filed Under: participatory research Tagged With: participatory research, Stanford Medicine X

Who provides the fuel for the health data fire? Hint: Look in the mirror.

April 1, 2013 By Susannah Fox 6 Comments

“If iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday New York Times, “Letting Down Our Guard With Web Privacy.” I think personal data is fueling health […]

Filed Under: key people, trends & principles Tagged With: Alessandro Acquisti, E-Patient Dave, Ian Eslick, New York Times, patientslikeme, privacy, Somini Sengupta, TuDiabetes, William Gunn

Tracking for Health: Detailed Demographics

March 20, 2013 By Susannah Fox 8 Comments

Detailed demographic breakdowns for responses to health tracking questions

In response to popular demand, my Pew Research colleagues and I posted detailed demographic tables for the “Tracking for Health” study. I should warn you: These are not pretty tables. You may need a ruler to keep track of the rows and columns since we crammed as much data into each table as possible. But […]

Filed Under: demographics, understanding statistics Tagged With: Pew Internet, Pew Research Center, Quantified Self, tracking, Tracking for Health

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