Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]
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How my food-allergy community “flips the clinic”
May 10-16, 2015, is Food Allergy Awareness Week. I am grateful to the women (and a few men) who help me care for my child with food allergies. I’ve never met most of them in person, but they are there for me, 24×7, answering questions and sharing resources.
Public Q&A: Online patient communities
A community colleague recently asked me where he might find the latest numbers on the percentage of U.S. adults who participate in online patient communities. In the spirit of “public Q&A” I’d like to share my answer and ask people to add tips about other resources in the comments. Up until July 2014, I led […]
Hack needed: Tiny pills, trembling hands
A friend writes: I am sweeping the kitchen and just found one of my brother-in-law’s Parkinson’s pills [Ropinirole]. Every time he has to take it, he drops it. It is tiny and, well, he has Parkinson’s. I can’t tell you how many times the kids end up on the floor looking for the pill he […]
The Value of Data
Health care is in danger of missing the point. (A repost from 2014 that’s relevant today thanks to announcements at HIMSS.) In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at U.S.News saw an opportunity […]
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