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Susannah Fox

I help people navigate health and technology.

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I’m the New CTO of HHS

May 28, 2015 By Susannah Fox 44 Comments

Kids holding up an American flag at the Freedom Classic 2015 by Zach Frailey

I am thrilled to share the news that I am the new Chief Technology Officer at the U.S. Department of Health and Human Services. Grateful for the opportunity to serve under the leadership of Secretary Burwell — truly an extraordinary person. Full post (originally appeared on HHS.gov): When I left the Pew Research Center to advise […]

Filed Under: policy issues Tagged With: Hhs, Pew Research Center, public service, Robert Wood Johnson Foundation

Troublemaker vs. Rebel

May 24, 2015 By Susannah Fox 8 Comments

List of attributes: troublemaker vs rebel by Lois Kelly

I adore this slide that Wendy Sue Swanson, MD, captured during a presentation by Helen Bevan. The list was formulated by Lois Kelly and I highly recommend exploring her site: Foghound.com. The word pair that resonates most with me is “alienate vs. attract,” possibly because it reminds me of my grandmother‘s advice: You catch more […]

Filed Under: key people Tagged With: Rosalie Yerkes Figge, Wendy Sue Swanson

Quantified Self Public Health

May 12, 2015 By Susannah Fox 11 Comments

Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]

Filed Under: key people, participatory research, research issues Tagged With: Don Norman, home health care hacks, Ian Eslick, maker movement, public service, QSPH, Quantified Self

How my food-allergy community “flips the clinic”

May 11, 2015 By Susannah Fox Leave a Comment

May 10-16, 2015, is Food Allergy Awareness Week. I am grateful to the women (and a few men) who help me care for my child with food allergies. I’ve never met most of them in person, but they are there for me, 24×7, answering questions and sharing resources.

Filed Under: e-patient stories, patient networks, peer-to-peer health care Tagged With: food allergy, Stanford Medicine X

Public Q&A: Online patient communities

April 29, 2015 By Susannah Fox 1 Comment

A community colleague recently asked me where he might find the latest numbers on the percentage of U.S. adults who participate in online patient communities. In the spirit of “public Q&A” I’d like to share my answer and ask people to add tips about other resources in the comments. Up until July 2014, I led […]

Filed Under: patient networks, peer-to-peer health care, public Q&A, trends & principles Tagged With: Pew Internet, Pew Research Center

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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