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Susannah Fox

I help people navigate health and technology.

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Health Geek Radio: Adam Bosworth’s Straight Talk Express

May 4, 2010 By Susannah Fox Leave a Comment

Adam Bosworth of Keas delivered quite a lecture yesterday at the Alliance for Healthcare Foundation. He talks about how Americans don’t really like data (but they need it), why “frugal innovation” is the best path for start-ups, how e-Patient Dave shook up the EHR world, why health privacy legislation would kill patient-driven research, and why […]

Filed Under: health data, medical records, policy issues Tagged With: Adam Bosworth, E-Patient Dave, EHR, Google Health, Health Data, Health Privacy, Keas

The Decision Tree: How Better Health Can Scale

May 1, 2010 By Susannah Fox 3 Comments

“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care from the internet. But there is a loophole: to […]

Filed Under: health data, patient networks, policy issues, positive patterns Tagged With: 23andme, chronic disease, CureTogether, Decision Tree, digital divide, Genetics, getupandmove, Health Data, Hipaa, patientslikeme, Pew Research Center, susannah fox, Thomas Goetz

Health 2.0 Europe: A Moveable Feast–Susannah Fox

April 19, 2010 By Susannah Fox 13 Comments

Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, […]

Filed Under: demographics, trends & principles Tagged With: ACOR, california healthcare foundation, cancer, Chronic Conditions, chronic disease, diabetes, health 2.0, Heart Conditions, High Blood Pressure, Internet Users, Lung Conditions, participatory medicine, patientslikeme, pew internet project, Pew Research Center, Sharing Strength, Social Impact Of The Internet

Chronic Disease in Data and Narrative–Susannah Fox

March 24, 2010 By Susannah Fox 60 Comments

For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a heart condition, lung condition, high blood pressure, diabetes, and/or cancer has an […]

Filed Under: patient networks, understanding statistics Tagged With: california healthcare foundation, chronic disease, Pew Internet, Pew Research Center

Why is participatory medicine such a tough sell?–Susannah Fox

March 22, 2010 By Susannah Fox 13 Comments

Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern University in Fort Lauderdale,  FL.  He teaches a course on Consumer Health Informatics and Web 2.0 in Healthcare and blogs and conducts research about related topics. […]

Filed Under: research issues, trends & principles, Why PM Tagged With: Centers For Disease Control, Consumer Health Informatics, participatory medicine, Pharmacists, social media

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