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Susannah Fox

I help people navigate health and technology.

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Trustworthiness

What if we had people’s trust?

November 30, 2020 By Susannah Fox 8 Comments

Trust

I’d like to revive the spirit of the “What if health care…?” conversation, this time in the context of data and trust. What could we build with health data if we had people’s trust? How about: An algorithm to prevent suicide. An app to prevent addiction relapse. An app to help adolescents living with chronic […]

Filed Under: health data Tagged With: #whatifhc, addiction, adherence, Airbnb, FasterCures, Johnson & Johnson, Project HealthDesign, suicide prevention, Trustworthiness

Credible, useful, helpful, trustworthy

November 16, 2020 By Susannah Fox 6 Comments

Sandhill cranes taking flight at sunrise

Inspired by a conversation with my FasterCures colleagues, I began looking into survey data related to trust and credibility, particularly: What entities and resources do people turn to when they need advice about important topics? Edelman, a global communications firm, has been measuring trust and credibility for 20 years. Their most recent Trust Barometer asked […]

Filed Under: peer-to-peer health care Tagged With: diabetes, Edelman, FasterCures, Pew Internet, Pew Research Center, Tom Ferguson, Trustworthiness

Assessing the quality of peer health advice

August 12, 2019 By Susannah Fox 37 Comments

Trust

“Can you really trust what you read online?” is a frequent (and valid) question about online health information, particularly peer to peer advice. People who are part of healthy peer communities sometimes scoff at the question since they see so much good coming from the opportunity to connect and share information. But how might we […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Information Quality, John Grohol, peer-to-peer healthcare, Trustworthiness

A Matter of Trust, Perception, Risk, and Uncertainty

July 1, 2019 By Susannah Fox 18 Comments

Black and white image that resembles a Rorschach ink blot

The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust -A […]

Filed Under: health data, news & gossip, patient networks, peer-to-peer health care, policy issues Tagged With: ALS, Jane Sarasohn-Kahn, Lisa Suennen, patientslikeme, Trustworthiness

Trust gap: Health apps and data sharing

April 29, 2019 By Susannah Fox 21 Comments

Man on a beach blocks camera with his hand

There has been a steady drip-drip-drip of articles documenting how health apps are sharing data with third parties: Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis, by Grundy et al. (British Medical Journal, Feb. 25, 2019) You Give Apps Sensitive Personal Information. Then They Tell Facebook. Wall […]

Filed Under: demographics, health data, policy issues, trends & principles Tagged With: Fda, Health Data, Health Privacy, Hhs, Hipaa, NHS, Trustworthiness

Frequently Asked (But Unanswered) Questions About E-patients

May 11, 2010 By Susannah Fox 41 Comments

As I’ve written before, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR input. These excellent questions were sent to me by Liav Hertsman and his colleagues at Tel Aviv […]

Filed Under: demographics, public Q&A, research issues Tagged With: authority, demographics, doctor ratings, drug reviews, Pew Internet, Reliability, Trustworthiness, UGC

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