I have never done much marketing for myself as a keynote speaker, but I am on a mission to change the world. It’s not time to be shy. I want everyone to understand the power and potential of patients, survivors, and caregivers connecting with each other to solve problems. My upcoming book, Rebel Health, is […]
Rebel Health
Rebel Health
Longtime readers know I’ve spent the last two years writing a book about peer-to-peer health care and the incredible work being done by patients, survivors, and caregivers. (Even longer-term colleagues and friends know I’ve had this project on simmer since I left Pew Research, but I got happily sidetracked a couple of times.) I am […]
Patient-led innovation
Update: Here’s a link to the list I created based on the comments gathered here and on Twitter and LinkedIn. I am curating a list of organizations that are putting patient-led innovation to work. What follows is an incomplete list — please help me by sharing YOUR favorite peer-to-peer communities in the comments below. Extra […]
Champions fast-track innovations
Champions help take a scrappy patient-led idea to scale. They give Seekers, Networkers, and Solvers access to resources held by mainstream institutions such as funding, media attention, regulatory guidance, or access to labs and manufacturing facilities. Champions fast-track innovations. This is the fourth post in a series that I’m writing to introduce the archetypes of […]
Solvers attack problems
Solvers identify challenges, then test and develop new concepts, code, and inventions to meet their needs. They work on a problem with a singular focus because their life – or the life of a loved one – often depends on their ability to find or invent a solution. Some Solvers openly share their designs online for […]
Networkers pool resources
“You are not alone.” People who are newly diagnosed or facing a health challenge long to hear those words. Connection is an antidote to suffering and confusion. When they are able to tap into peer-to-peer networks of patients and caregivers, Networkers learn in community about their condition, shrug off the burdens of isolation and shame, then urge […]
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