Hot springs have always been therapeutic destinations, but it was a father, desperate to relieve his child’s pain, who invented the home spa. Candido Jacuzzi, a mechanical engineer, and his wife, Inez, tried everything to help their son, who was suffering from juvenile rheumatoid arthritis. Hydrotherapy helped immensely, so Candido set to work, eventually building […]
Rebel Health
Transforming research participation
Below is a letter I wrote in response to Tania Simoncelli’s article, “From Bedside to Bench and Back,” (Issues in Science and Technology, Summer 2023). Read all the responses here. Biomedical research has blind spots that can be reduced, as Tania Simoncelli writes, by “centering the largest stakeholders in medicine—the patients.” By focusing on rare […]
Cover reveal
I am thrilled to share the cover design for my upcoming book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, set to come out in February 2024 from MIT Press. The design is inspired by what Clara Ganz created for me — a bright, joyful color scheme with a type treatment […]
Pre-order Rebel Health
If you are likely to buy a paper copy of my upcoming book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, Barnes & Noble is offering a 25% discount if you order by September 8, 2023. Here’s a direct link. Note: you need to create a free account and use the […]
I’ve got something to say
I have never done much marketing for myself as a keynote speaker, but I am on a mission to change the world. It’s not time to be shy. I want everyone to understand the power and potential of patients, survivors, and caregivers connecting with each other to solve problems. My upcoming book, Rebel Health, is […]
Rebel Health
Longtime readers know I’ve spent the last two years writing a book about peer-to-peer health care and the incredible work being done by patients, survivors, and caregivers. (Even longer-term colleagues and friends know I’ve had this project on simmer since I left Pew Research, but I got happily sidetracked a couple of times.) I am […]
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