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Susannah Fox

I help people navigate health and technology.

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Rare Disease

On celebrating “small wins” and lifting up women and girls

April 25, 2014 By Susannah Fox 4 Comments

Two items stopped me in my tracks this week. Sharing them here on my outboard memory so I don’t forget (and hopefully they will inspire you, too).

Filed Under: key people, positive patterns Tagged With: Rare Disease, Stanford Medicine X

Every-day magic

March 27, 2014 By Susannah Fox 16 Comments

I’ve been following Bertrand Might’s story for a few years through his parents’ blog about his “movement disorder” (which turns out to be related to his incredibly rare condition, NGLY1 deficiency). Last week, Matthew Might co-authored a commentary with Matt Wilsey in the journal of the American College of Medical Genetics and Genomics: “The shifting model […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: Matt Might, peer-to-peer healthcare, Rare Disease

“Pursue hope like it’s an outlaw.”

March 17, 2014 By Susannah Fox 3 Comments

Zebras by schinkerj on Flickr

– Afternoon Napper during Rare Disease week in Washington, DC I love that line and that spirit — and this image captured by John Schinker because it looks like these zebras have formed a posse and are heading out on the trail together. When you hear hoofbeats, think “horses” but don’t rule out zebras.* And if you’re […]

Filed Under: beauty and wonder Tagged With: Rare Disease

Extremely rare, incredibly typical

February 28, 2014 By Susannah Fox 5 Comments

After nearly 15 years tracking the cultural shifts happening at the intersection of health and the internet, I know a few things. #1 – don’t get between a parent and a piece of information he or she needs to make a decision about the health of a child. #2 – from 28.8 modems to the latest smartphones, […]

Filed Under: peer-to-peer health care Tagged With: Rare Disease

A field guide to The Diagnosis Difference

November 26, 2013 By Susannah Fox 67 Comments

The Pew Research Center released a report today on people living with chronic conditions: The Diagnosis Difference. Policy makers, patient advocates, entrepreneurs, investors, clinicians — all health care stakeholders — can use the data to map the current landscape. There are still barren patches, where people remain offline and cut off from the resources and […]

Filed Under: demographics, trends & principles Tagged With: california healthcare foundation, cancer, diabetes, epilepsy, fibromyalgia, Heart Conditions, High Blood Pressure, Lung Conditions, Pew Research Center, Rare Disease, rheumatoid arthritis

“Every Mom and Dad of a child with a rare disease has earned an honorary PhD”

March 8, 2013 By Susannah Fox 5 Comments

People in academic regalia, photo by 1yen on Flickr

That’s a line from an essay entitled “cri de cure” by Ethan Perlstein. I tweeted it and got some great replies: Hahaha. I’m often asked by medical teams if I am a MD or nurse. I tell them ‘no,but I have a PhD when it comes to my daughter’ – @SolidFooting Yes! I know more […]

Filed Under: pts as teachers Tagged With: National Organization For Rare Disorders, Rare Disease

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  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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