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Susannah Fox

I help people navigate health and technology.

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Patient Interview

E-patient Interview: Keith Schorsch–Susannah Fox

June 6, 2008 By Susannah Fox 7 Comments

When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s the clue that saved Keith. Keith turned his experience into a consumer […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: Baby Boomers Age, Consumer Survey, Facial Paralysis, Finding Health, Health And Wellness, Health Care Decisions, Health Consumer, Health Consumers, Health Experience, Huge Wave, Lyme Disease, Passive Role, Patient Interview, Patient Story, Personal Context, Personal Health Decisions, Schorsch, Skeletal Pain, Unmet Health, Wellness Issues

E-patient Interview: Sheryl Stein

May 1, 2008 By Susannah Fox 5 Comments

Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: blog, chronic disease, Common Variable Immunodeficiency, community, CVID, Delivery Methods, Diagnosis, Diagnostician, e-patient, Gammaglobulin Therapy, Health Care Decisions, Humor On, Immune Deficiency Foundation, Ingrained Habit, Listserve, NIH, No Doubt, Pamphlets, Patient Interview, Patient Interviews, patient networks, Pharmaceutical Company, Pros And Cons, Self Advocate, self-care, Whopper

E-patient Interview: Amy Tenderich–Susannah Fox

April 18, 2008 By Susannah Fox 5 Comments

Amy Tenderich is the engine behind DiabetesMine, “a gold mine of straight talk and encouragement for people living with diabetes.” Hearing her speak at Health 2.0 was a highlight of the conference for me and she just co-authored a book, so I wanted to bring her over to our page and ask a few questions […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: 99s, American Healthcare System, Asking The Right Questions, C Section, Collective Voice, Continuous Glucose, Diabetes Diagnosis, Glucose Monitors, Godsend, Gold Mine, Health Care Decisions, Health Insurance, Information Patients, Insulin Pumps, Kick Ass, Living With Diabetes, Patient Interview, Share Experiences, Straight Talk, Time In History, Type 1 Diabetes

E-patient Interview: Stirrup Queen

April 16, 2008 By Susannah Fox 7 Comments

Cheryl Miller has written an excellent article, “Blogging Infertility,” in The New Atlantis. She brings up a lot of themes that have been echoing throughout my other reading: a once-silent group newly empowered by the internet; teaming patients with similar profiles; home-care tips (there could be a whole blogroll on injections, btw, starting with AmyT […]

Filed Under: e-patient stories, maternity, others' e-patient stories Tagged With: Cheryl Miller, Community Member, Ectopic, Endo, Health Care Decisions, New Atlantis, Nicu, Patient Community, Patient Interview, Peggy Orenstein, pregnancy, Reconnection, Self Advocate, Stirrup, Treatment Choices, Waiting For Daisy, Waiting Rooms

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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