Hearing her speak at Health 2.0 was a highlight of the conference for me and she just co-authored a book, so I wanted to bring her over to our page and ask a few questions about how she came to be such a kick-ass e-patient.
1) The term “e-patient” describes individuals who are equipped, enabled, empowered and engaged in their health and health care decisions. And naturally the e also stands for electronic. Would you identify as an e-patient? Is there another term you’d prefer?
I like all the e’s you mention – although “equipped” really depends on how good our health insurance is. Many PWDs (politically correct term for people with diabetes) have a real struggle to get coverage for insulin pumps, supplies, and testing devices – in particular new continuous glucose monitors, which can be a godsend to patients with volatile blood sugars.
Meanwhile, the Internet has given us patients a chance to come together to share experiences, practical tips, and our feelings. And it’s also given us a collective voice we never had before. With free access to all sorts of medical information, patients like me can drive our own care for the first time in history, by asking the right questions and demanding the latest and greatest treatments.
2) Were you always this engaged in your health care, or did your diabetes diagnosis trigger it?
Nope, I was never very engaged at all – except when I had that fight with my health insurance over paying the bills for my second C-section (I’ve had three). But my diagnosis with Type 1 diabetes changed everything. It came as quite a shock, and I realized that it was up to me to be my own best advocate and learn how to navigate the American healthcare system. I’m still learning every day, because it’s incredibly complicated.
3) You have a background in journalism and communications – how have you applied those skills & experiences to your current work? Was there anything else in your background that may have prepared you for your new role?
My husband says being a blogger is simply “my calling.” I’m a trained journalist with a master’s degree in communication studies, so that helps. But the beauty of the blog is that it’s so personal and free-wheeling. If I feel like posting a joke or a poem, I can do that anytime. Meanwhile I take my reporting role quite seriously, investigating new products and advancements in diabetes care, and interviewing all sorts of celebrities and luminaries in the field.
What else helps?
Type A personality.
Quirky sense of humor.
All of these traits are quite conducive to dealing with Type 1 diabetes, which is a very high-self-maintenance disease.