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Susannah Fox

I help people navigate health and technology.

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November 20, 2014 By Susannah Fox 24 Comments

Erin and Drew

The Reuters story about Facebook taking its “first steps into healthcare” read like an announcement that Las Vegas was getting into entertainment or that New York City was getting into fashion. Extraordinary health communities have grown up between the cracks of Facebook’s platform. It’s just that up until now executives publicly looked the other way. […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: cystic fibrosis, Erin Moore, Facebook, Inspire, mitochondrial disease, patientslikeme, Smart Patients

Evolution of online patient communities

February 1, 2014 By Susannah Fox 28 Comments

A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]

Filed Under: e-pts resources, patient networks Tagged With: Facebook, Smart Patients

Examples, please: peer-to-peer healthcare

June 27, 2011 By Susannah Fox 83 Comments

I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with […]

Filed Under: net-friendly docs, patient networks Tagged With: asthma, Behavior Change, Bonus Points, caregivers, Clinical Practices, Clinicians, Facebook, Health Groups, High Blood Pressure, Macarthur, National Organization For Rare Disorders, Networking Tools, Notoriety, Ob Gyn, Peer To Peer, Population Level, Powerful Resources, Social Networking, Twitter, Weight Watchers, Writ

Pandas, Lobsters, and Health Care

July 15, 2010 By Susannah Fox 12 Comments

Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of chronic illness, patient readiness, and technology readiness. That makes sense to me, […]

Filed Under: general, trends & principles Tagged With: Adam Rifkin, Alexandra Carmichael, BJ Fogg, Center For Studying Health System Change, Facebook, Google, Innovator's Prescription, Joe Kvedar

A New Conversation About Health Privacy: Who’s In?

May 21, 2010 By Susannah Fox 29 Comments

Light bulbs in the night sky - a photo by Ted Eytan

Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness settings (but the company maintains radio silence)? Pew Internet research shows that a sizeable […]

Filed Under: health data, patient networks, policy issues Tagged With: Facebook, Hipaa, patientslikeme, Pew Internet, privacy

E-patients.net = suggested reading–Susannah Fox

February 17, 2010 By Susannah Fox 6 Comments

Gretchen Berland is one of my heroes, so I was thrilled when she asked me to give a guest lecture at Yale. Then I read the syllabus for “Media & Medicine in Modern America.” It’s too cool to keep to myself…

Filed Under: general Tagged With: Adversarial Relationship, Biomedical Researchers, Carleen, Century Medicine, England Journal Of Medicine, Facebook, Gretchen Berland, Health Care Health, Media Portrayals, Medical Profession, New England Journal, new england journal of medicine, Offline Sources, Political Controversies, Practicing Medicine, Public Debates, Public Expectation, Reshaping Health Care, Social Interests, Sydney Jones

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