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Susannah Fox

I help people navigate health and technology.

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e-patients

Help Me Choose: Sessions at the Chronic Disease Care Conference–Susannah Fox

November 3, 2008 By Susannah Fox 4 Comments

I will be heading to San Francisco this week to attend the Chronic Disease Care conference sponsored by the California HealthCare Foundation. Registration is closed but I promise to take notes on as many panels as possible. Please help me choose from the smorgasbord of topics and I’ll make you a plate.

Filed Under: reforming hc Tagged With: california healthcare foundation, chronic disease, diabetesmine, e-patients, hellohealth, patientslikeme

Participatory Medicine, Connected Health–Susannah Fox

October 30, 2008 By Susannah Fox 14 Comments

The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008.  I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, […]

Filed Under: trends & principles Tagged With: data, e-patients, participatory medicine

Go online. Not too much. Mostly…?–Susannah Fox

February 12, 2008 By Susannah Fox 15 Comments

Michael Pollan’s answer to diet angst is to “Eat food. Not too much. Mostly plants.” Is there an equivalent maxim for information angst? If not, does someone out there want to make one up? Because a new study published in Cancer argues that e-patients can take a common-sense approach to online health research and do […]

Filed Under: positive patterns Tagged With: ama, cancer, e-patients, epatients, jama, journal, librarians, patients, quality

Harnessing Openness–Susannah Fox

February 8, 2008 By Susannah Fox 1 Comment

The Committee for Economic Development (CED) is an independent, non-partisan research organization with a trustee list dominated by corporations (not that there’s anything wrong with that — my own funders, the Pew Charitable Trusts, are also listed on the CED site). CED recently released an engaging report entitled, “Harnessing Openness to Transform American Health Care” […]

Filed Under: e-pts resources Tagged With: e-patients, healthcare, journal, new england journal of medicine, open source, plos

Consumer Resources–Susannah Fox

February 6, 2008 By Susannah Fox 6 Comments

As we continue our discussion of the definitions of 2.0 and user-generated content (UGC), I thought I’d highlight some other buzzwords and link to a few consumer-oriented resources. I still trust librarians to help me judge information sources, so my first set of links are to articles that first appeared in The Journal of the […]

Filed Under: positive patterns Tagged With: e-patients, healia, health, librarians, medstory, pubmed, search

Open Internet vs. Closed Doctor-Directed Systems–Susannah Fox

October 11, 2007 By Susannah Fox 1 Comment

Our research shows that most people just use a general search engine when they have a health question, but many report feeling overwhelmed by what they find. What’s the trade-off? What other resources are out there for e-patients?

Filed Under: trends & principles Tagged With: cancer, CHESS, doctor, e-patients

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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