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Susannah Fox

I help people navigate health and technology.

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cancer

Cancer 2.0

December 13, 2010 By Susannah Fox 9 Comments

President's Cancer Panel Agenda for a meeting December 14 2010

Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world) does not miss this latest opportunity for education and discovery? The Pew Internet Project‘s latest report on health and health care, Cancer […]

Filed Under: patient networks, trends & principles Tagged With: cancer, Pew Internet

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Patient Communities: Which Way Forward?–Susannah Fox

August 9, 2010 By Susannah Fox 12 Comments

If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek SimCity exercise. I was actually asked that question recently, by people who have lined up the […]

Filed Under: patient networks Tagged With: ACOR, cancer, Decision Tree, health 2.0, imedo, iWantGreatCare, paginemediche.it, Paris, participatory medicine, patientslikeme, Pew Internet, The Moment

Laugh, Sing, and Eat Like a Pig–Susannah Fox

July 18, 2010 By Susannah Fox 1 Comment

e-Patient Dave’s book, Laugh, Sing, and Eat like a Pig, is out! Mark Graban captures the health geek excitement: The best writers make you feel like you’re spending time with a wise friend — add some tears and laughs and you have Dave’s book. I wasn’t there for his whole journey, so I’m learning new […]

Filed Under: key people, Why PM Tagged With: cancer, E-Patient Dave, Laugh Sing

Health Geek Tip: Abstracts are ads. Read full studies when you can.–Susannah Fox

June 16, 2010 By Susannah Fox 16 Comments

Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you:

Filed Under: research issues Tagged With: cancer, Gary Schwitzer, Gilles Frydman, HealthNewsReview, Ivan Oransky, national cancer institute, Wikipedia

Health 2.0 Europe: A Moveable Feast–Susannah Fox

April 19, 2010 By Susannah Fox 13 Comments

Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, […]

Filed Under: demographics, trends & principles Tagged With: ACOR, california healthcare foundation, cancer, Chronic Conditions, chronic disease, diabetes, health 2.0, Heart Conditions, High Blood Pressure, Internet Users, Lung Conditions, participatory medicine, patientslikeme, pew internet project, Pew Research Center, Sharing Strength, Social Impact Of The Internet

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