• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

Brain Tumor

Peer health playbooks

August 6, 2021 By Susannah Fox 18 Comments

Sunflowers with a bee

I’m collecting examples of peer health playbooks: the how-to guides that patients and caregivers write so that people following their path won’t stumble into the same pitfalls. If you know of one that is not listed below, please tell me about it in the comments. I AM ALS put together a step-by-step playbook of how […]

Filed Under: peer-to-peer health care Tagged With: ALS, Brain Tumor, Caregiver Action Network, Carmen Bombeke, Dana Lewis, food allergy, Genetic Alliance, I AM ALS, IBD, ImproveCareNow, Katherine Onk, Lianne Mandelbaum, Meghan Marsac, Melissa Hogan, mental health

Put your tumor to a better use by making it into a bottle opener

October 2, 2017 By Susannah Fox 4 Comments

Three people standing in front of a door at the White House. One person is holding replicas of a brain tumor.

Image above: Megan Smith, Obama White House Chief Technology Officer; Steven Keating, holding replicas of his brain tumor; and John P. Holdren, Director of the Obama White House Office of Science and Technology Policy; on the day the Precision Medicine Initiative was announced. I’m honoring the contributions of my community colleagues over the years by […]

Filed Under: featured commenters, peer-to-peer health care Tagged With: Brain Tumor, Peer To Peer, peer-to-peer healthcare

Case study: Brain surgery

April 25, 2017 By Susannah Fox 36 Comments

Plastic models of the human brain sit on shelves

We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Brain Tumor, case study, peer-to-peer healthcare, surgery

Patient Power: Andrew Schorr–Susannah Fox

October 6, 2008 By Susannah Fox 6 Comments

Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: Andrew Schorr, Better Health, Bladder Cancer, Brain Tumor, Cnn, Common Goal, Generous Support, Health Care Professionals, Health Concerns, Lung Cancer, M D Anderson, Medical Centers, Myomectomy, Patient Comments, Patient Power, Renowned Experts, Team Approach, Trusera, Uterine Fibroids, Young Adults

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

Copyright Susannah Fox © 2025 · WordPress · Log in