[Don’t miss yesterday’s related post about the founding heroes of patient empowerment.] Something important is afoot in the land when people are able to access and share “industrial strength” information instead of being satisfied with the “consumer strength” information previously offered to them. In the political arena, 39% of internet users (29% of all adults) […]
Search Results for: internet access
Data and Insights on Minority Populations–Susannah Fox
The Pew Internet Project‘s sample sizes for health surveys have been too small to do in-depth analysis on race/ethnicity and economic status. One challenge is that a significant portion of the respondent pool refuses to answer the household income question (the refusal rate can be as high as 20%). So we use education levels as […]
E-patient Interview: Keith Schorsch–Susannah Fox
When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s the clue that saved Keith. Keith turned his experience into a consumer […]
The Plausible Promise of Participatory Medicine–Susannah Fox
I think participatory medicine is what Eric Raymond calls a “plausible promise”: something big enough to inspire interest yet achievable enough to inspire confidence. Reforming health care is too big for most people to grasp; creating spaces for participatory medicine is not. E-patients are already finding, sharing, and mashing up health information online. If you […]
E-patient Interview: Amy Tenderich–Susannah Fox
Amy Tenderich is the engine behind DiabetesMine, “a gold mine of straight talk and encouragement for people living with diabetes.” Hearing her speak at Health 2.0 was a highlight of the conference for me and she just co-authored a book, so I wanted to bring her over to our page and ask a few questions […]
Health Care Consumerism–Susannah Fox
The Deloitte Center for Health Solutions released a very interesting report on “Health Care Consumerism” which looks at five “zones” of activity: traditional health services, self-directed care, alternative and non-conventional health services, financing, and information seeking. I recommend checking out their report for a few reasons: 1) Many of their findings ring true to me. […]
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