I’ve been following Bertrand Might’s story for a few years through his parents’ blog about his “movement disorder” (which turns out to be related to his incredibly rare condition, NGLY1 deficiency). Last week, Matthew Might co-authored a commentary with Matt Wilsey in the journal of the American College of Medical Genetics and Genomics: “The shifting model […]
Search Results for: internet access
Extremely rare, incredibly typical
After nearly 15 years tracking the cultural shifts happening at the intersection of health and the internet, I know a few things. #1 – don’t get between a parent and a piece of information he or she needs to make a decision about the health of a child. #2 – from 28.8 modems to the latest smartphones, […]
The new environment for health care decisions
“The tools are in place. The culture is shifting to expect that people have access to information and each other. There is mounting evidence that connecting patients with each other and with their data can have a positive effect on health outcomes…” – Health Care Hackers I’ll speak today at Health 2.0 Santa Clara about […]
A Healthy America
The U.S. is facing a serious health care challenge. Nearly half (45%) of U.S. adults are living with at least one chronic condition and many more people are struggling to maintain a healthy weight. We are also presented with a set of opportunities: Clinicians continue to be a dominant source of health information, along with […]
Public Q&A: How should a youth-focused sexual health clinic incorporate social media and SMS into their work?
Continuing my series of public Q&A sessions, I’ll share the following: We are working on an innovation concept paper to a local foundation and would like to explore how to better use social media and SMS at youth-focused sexual health clinic. We need to be able clearly articulate the benefits of social media and SMS […]
Public service researcher
I think of myself as a public service researcher. The Pew Charitable Trusts and the California HealthCare Foundation provide the funds for the work I do and, in turn, I do everything I can to inject the findings into the public conversation: publish reports and data sets online, for free; talk to reporters and bloggers […]
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